Hydrocephalus Canada

In November of 2017 the Spina Bifida & Hydrocephalus Association of Ontario (SB&H) began a process of change. We became Hydrocephalus Canada (HC), after supporting families, individuals and healthcare professionals in Ontario for more than 40 years as The Spina Bifida & Hydrocephalus Association of Ontario.

Hydrocephalus Canada incorporates the Spina Bifida and Hydrocephalus Association of Ontario (SB&H). As Hydrocephalus Canada, the new association continues to offer the same valued programs and services that the Ontario community relies upon. But more than that, we are expanding our mandate to include the growing number of people across Canada living with hydrocephalus and Normal Pressure Hydrocephalus.

This national expansion will strengthen the growing community of people living with hydrocephalus and enable us to better support advances in treatment for hydrocephalus and related neurological conditions such as spina bifida, the sharing of education and knowledge, and standards of care. Our mission is to offer strength and support for people living with hydrocephalus and related neurological conditions, and to contribute to awareness and research. At the same time, we will work to find a cure.

The new association will build on the legacy of SB&H in Ontario and use our experience, knowledge and drive to outreach, offer useful information and support for members, and share relevant research and treatment news across medical communities, academia, associations, and industry partners, provincially, nationally and globally.

 

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July 17, 2018

PRESS RELEASE
LCBO Helps Hydrocephalus Canada Potentially Reverse Dementia

 

Starting July 22, the public can help reverse dementia by supporting Hydrocephalus Canada with a donation at any of the more than 660 LCBO stores throughout Ontario. Donation boxes for Hydrocephalus Canada will be displayed at LCBO checkout counters until August 18, 2018.

Hydrocephalus is a chronic neurological condition that occurs when the cerebrospinal fluid (CSF) that nourishes our brains accumulates beyond normal levels. This can cause painful, debilitating symptoms. Left untreated, hydrocephalus can cause permanent brain damage, learning challenges, physical disabilities, and even death.

It is estimated that approximately 120,000 Canadians are living with hydrocephalus. It is possible that an additional 70,000 older adults in Canada may have NPH (Normal Pressure Hydrocephalus) which is considered to be a form of dementia. If identified early and treated appropriately, the debilitating symptoms associated with NPH can potentially be reversed.

Hydrocephalus Canada feels immense gratitude to the LCBO for helping the charity raise awareness and funds through such a simple and highly-visible campaign. The LCBO Donation Box Program is a wonderful gift. The money raised this summer will be used to build Hydrocephalus Canada’s BRAINWAVE programs which support Ontarian’s living with, or at risk of developing, hydrocephalus.

“Knowing that LCBO customers and their compassionate staff at all locations across the province are not only learning about hydrocephalus but supporting our education efforts, is incredible,” says Hydrocephalus Canada, Chair, Claudio Cinapri. “We need to increase awareness so people recognize the symptoms of hydrocephalus through the education programs we offer and seek the medical attention they need so they can protect their brains and experience the best life possible.”

“Through the generosity of LCBO customers and the support of our staff, we are proud to support Hydrocephalus Canada to raise awareness and funds towards their mission of improving the lives of countless Ontarians,” says LCBO Vice President, Communications & Corporate Affairs, Jennifer Bell.  “The Donation Box program provides the opportunity for our customers to donate to causes they care about.”

Hydrocephalus Canada is one of 27 provincial and numerous local charities that will benefit from LCBO’s province-wide Donation Box Program in 2018. In fiscal 2016-17, LCBO raised a total of more than $13.3 million for charities through in-store fundraising, special programs and initiatives. In addition, LCBO’s annual dividend transfer to the Ontario government, which totaled $2.06 billion in fiscal year 2016-17 ending March 31, 2017, excluding taxes, supports a wide range of important government programs, services and priorities, including health care and education.

Hydrocephalus Canada thanks the public for its support when shopping at their local LCBO store from July 22 – August 18, 2018.

 

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MEDIA CONTACTS:

Catherine Mulvale
Hydrocephalus Canada
CMulvale@Hydrocephalus.ca   |  416-886-6777

   
LCBO Press Office
416-864-6700
pressoffice@lcbo.com

About Hydrocephalus Canada  |  Hydrocephalus Canada (HC) is helping empower Canadians living with hydrocephalus and spina bifida experience the best life possible. HC is establishing environments that protect, support and enhance the lives of those living with, or at risk of developing, hydrocephalus. As the voice of Canadians living with hydrocephalus, we initiate, facilitate and collaborate on awareness, education, support and research initiatives to help those impacted by hydrocephalus thrive. HC focuses its efforts under its BRAINWAVES initiatives which are Bridging Research, Awareness and Innovation With Advocacy, Education and Support.

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TGIF LOTTER CALENDAR ARTIST PROFILE: Meet our July artist, Jacqueline Parappally from Toronto and read about her and her art:

Jacqueline lives in Toronto with her parents and sometimes pesky little brother Jeremy. Jacqueline is kind and loves to learn. Her family is very proud of her. Jacqueline is 8 years old and enjoys arts and crafts, science experiments and reading. This year Jacqueline supported HYDROCEPHALUS CANADA by organizing a garage sale in support of the association.


 


 

1. How did you come up with the idea for this drawing that is included inside the calendar. 

I love to use shapes to draw mountains and I like nature. 

2. Why do you like drawing/painting or taking pictures?

I like drawing and painting because I like being creative

3. How did you feel when you heard your artwork was selected for the TGIF Calendar?

I was very happy and excited to hear that my artwork was selected for the calendar.

4. What are your hobbies and interests?

I like drawing, reading, cooking and science.

5. What do you want to be when you grow up?

A veterinarian or an artist. 

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