Support Resources


At Hydrocephalus Canada (HC), we understand how difficult it can be, even when things are going smoothly, to face the added challenges and concerns of living with hydrocephalus and/or spina bifida.
HC provides direct service to adults, youth, parents and guardians dealing with the challenges of these two conditions, offering information, resources, emotional support, and networking opportunities.
For more information please contact Hydrocephalus Canada at 1-800-387-1575 or email

Personal Support

You can contact us and know that we will be there to listen and support you through the daily challenges of living with spina bifida and/or hydrocephalus. We are your source for comfort and understanding, providing emotional support and information. Our staff and volunteers are empathetic, sharing your experiences.

Having difficulty getting what you need? HC can help! When issues arise related to health care, employment, transportation, recreation, education, funding, etc. We are here to support you through the process, whether by acting on your behalf or giving you the necessary tools to proceed on your own. You can find details about the support we offer at the links below:

Connect with Hydrocephalus Canada on Social Media

Hydrocephalus Canada is a network of individuals united by a common bond. Reaching across Canada to offer support and information might seem like a daunting task. And it is. But technology is lending us a hand. We are there on

Connect with us. Say hi. Ask us questions. Let us know how we can help you live the best life possible with hydrocephalus and/or spina bifida.