Hydrocephalus Canada is now in its 50th year of leadership and service. We thank everyone in our community for helping us to continue to offer the services to support those living with spina bifida and hydrocephalus. 

At Hydrocephalus Canada, we are grounded by 3 guiding statements:

Our Mission

Connecting the spina bifida and hydrocephalus communities across Canada through services, support, education, awareness and research.

Our Vision

A future without spina bifida and hydrocephalus.


Hydrocephalus Canada (HC) is the trusted source for compassionate, progressive and innovative solutions that drive efforts to:

  • Develop a Canadian strategy; to increase awareness about hydrocephalus and spina bifida
  • Create solutions that support prevention, early and accurate diagnosis and access to appropriate treatment, advancement of new treatments and optimal outcomes
  • Develop, establish, enhance and maintain education and awareness resources and encourage inclusive supportive hydrocephalus and spina bifida communities
  •  Fund Impactful Research 
  • Hydrocephalus Canada has a devoted staff and a strong, diverse and innovative Board of Directors with legal, financial, scientific, media and not for profit experience. It is counselled by a Medical Advisory Board (MAB) comprised of experts who specialize in hydrocephalus and spina bifida, and who are known and respected internationally. As the authoritative voice of Canadians living with hydrocephalus and/or spina bifida, we help those impacted by conditions to not only survive but thrive.