Who Are We
At Hydrocephalus Canada, we are more than an organization—we are a community. A community built on hope, strength, and unwavering support for those impacted with hydrocephalus and spina bifida across Canada.
Inspired by voices like Shauna Beaudoin, our Director, Programs & Information—an advocate living with spina bifida—we work to break down barriers, challenge misconceptions, and create opportunities for those living with these spina bifida and hydrocephalus/ From coast to coast, we stand beside individuals, families, caregivers, and healthcare professionals, offering resources, advocacy, and a voice for those who need it most.
Our mission is to empower, educate, and inspire, ensuring that no one takes this journey alone. Through support groups, awareness initiatives, and research advancements, we are committed to creating a future where every person living with hydrocephalus and spina bifida can live their fullest life.
Together, we push for progress. Together, we break barriers. Together, we are Hydrocephalus Canada.
You are not alone. We are here for you.
At Hydrocephalus Canada, we are grounded by 3 guiding statements:
Our Mission
Connecting the spina bifida and hydrocephalus communities across Canada through services, support, education, awareness and research.
Our Vision
A future without spina bifida and hydrocephalus.
Purpose
Hydrocephalus Canada (HC) is the trusted source for compassionate, progressive and innovative solutions that drive efforts to:
- Develop a Canadian strategy; to increase awareness about hydrocephalus and spina bifida
- Create solutions that support prevention, early and accurate diagnosis and access to appropriate treatment, advancement of new treatments and optimal outcomes
- Develop, establish, enhance and maintain education and awareness resources and encourage inclusive supportive hydrocephalus and spina bifida communities
- Fund Impactful Research
- Hydrocephalus Canada has a devoted staff and a strong, diverse and innovative Board of Directors with legal, financial, scientific, media and not for profit experience. It is counselled by a Medical Advisory Board (MAB) comprised of experts who specialize in hydrocephalus and spina bifida, and who are known and respected internationally. As the authoritative voice of Canadians living with hydrocephalus and/or spina bifida, we help those impacted by conditions to not only survive but thrive.
