Supporting Individuals and Families impacted by Spina Bifida and Hydrocephalus in Canada

We come together in many ways, united by a shared commitment to improving lives Whether you participate in a Hydrocephalus Canada event, advocate for change, or support our mission in other ways, you are making a meaningful difference!

This Canada-wide scholarship supports post-secondary students living with hydrocephalus and spina bifida who are currently enrolled or starting college, university, or trade programs in September. It celebrates ambition, resilience, and future goals while helping students move confidently toward their education and career dreams across Canada.

This Kitchener-based bursary supports students living with spina bifida and/or hydrocephalus living in Windsor-Essex and Chatham-Kent, Ontario, Canada. The bursary provides financial support for post-secondary education. Recognizing ambition, resilience, and future goals while helping recipients pursue meaningful opportunities in their communities.




Hydrocephalus Canada is proud to announce the 2025 Hydrocephalus Canada Research Award recipients. Two $20,000 grants have been awarded to Dr. Alfonso Fasano (Toronto Western Hospital, UHN) and Dr. Amy McPherson (Holland Bloorview Kids Rehabilitation Hospital) to advance research in normal pressure hydrocephalus rehabilitation and digital connection for youth with spina bifida and hydrocephalus. To read more about this exciting new and the plans for each grant click here. 


 

Hydrocephalus Canada is proud to be a partner of the 31st International Conference for Spina Bifida and Hydrocephalus (SBH Conference 2026), taking place in Montréal, Québec, Canada from October 15–17, 2026. With the theme “A Lifetime of Experiences: From Preconception to Ageing.”

This global conference brings together the international spina bifida and hydrocephalus community to share knowledge, strengthen collaboration, and advance lifelong care and support across every life stage.

SBH Conference 2026 is a unique opportunity for healthcare professionals, researchers, allied health teams, disability advocates, individuals with lived experience, families, caregivers, and international spina bifida and hydrocephalus associations to connect and learn together. The conference focuses on improving outcomes for people living with spina bifida and hydrocephalus, supporting evidence-informed clinical practice, accessibility, and inclusive systems of care from early planning and pediatric care through adulthood and ageing.

This event will be especially relevant for multidisciplinary and specialized care teams, including neurologists, neurosurgeons, pediatricians, family physicians, physiatrists (rehabilitation medicine), nurses, nurse practitioners, urologists, orthopedic specialists, physiotherapists, occupational therapists, speech-language pathologists, social workers, psychologists, case managers, transition-to-adult-care teams, and community service providers supporting lifelong care for spina bifida and hydrocephalus.

 

🔗 Learn more and register: www.sbhconference2026.com/en

Air Canada is the official airline company for the Conference. To reserve online at aircanada.com and enter the discount code C9NZGE91 in the box promotion on the reservation page.

Questions? Contact Hydrocephalus Canada at [email protected]