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Personal Stories

Hydrocephalus Canada’s Newest Volunteers...

Hydrocephalus Canada is proud to announce our 2 newest volunteers! Ana-Maria Oproescu HC Youth Ambassador With a strong vision for increasing awareness and leading change, I help promote the voices [&...

18th September 2023
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Bonnie Charbonneau: A Lifetime of commitment to Hydrocephalus Canada...

By: Mary Dufton Bonnie Charbonneau has been involved with Hydrocephalus Canada for 50 years. She looks back over her involvement, her long-standing role as executive director and her many great [&hell...

31st August 2023
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Ana-Maria’s Story of Empathy, Resilience and Determination...

by Mary Dufton Ana-Maria Oproescu has always been fascinated by neuroscience. Born with spina bifida and tethered cord, she believes her own medical experiences inspired her appreciation for the human...

07th July 2023
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Meaghen Bobryk: A Tale of Two Sisters and a Dog...

I’ve always loved wrestling; I love the passion and the strength behind every wrestling move. One day I decided to take my nephew to a wrestling show. That day changed my […]...

06th July 2023
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Nicole Neeson- A Life of Transitions on the Road to Independence...

by Mary Dufton Forty-two-year-old Torontonian Nicole Neeson describes herself as resilient and resourceful.  Moreover, she lives by the words in the song by Irving Berlin, “Anything you can do, I [...

22nd June 2023
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Angela Psimenatos: The Story of a Passionate Advocate...

by Mary Dufton Forty-two-year-old Ottawa resident Angela Psimenatos enjoys reading, connecting to her Greek heritage, speaking Greek at home, embracing the culture, language, and cuisine.  She lives ...

22nd June 2023
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Sylvia and Bob Langlois – The quest to find supports for their son Andrew...

by Mary Dufton Sylvia and Bob Langlois’ son Andrew was born with hydrocephalus in 1966.  At the time, periodic home visits from public health nurses to monitor their child’s condition […]...

05th June 2023
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Cam Jenkins: Journey to physical and mental wellness...

Cam Jenkins: Journey to physical and mental wellness by Mary Dufton Cam Jenkins believes that everyone has challenges – some are just more noticeable than others.  He dreams of a […]...

22nd April 2023
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Personal Stories

You are not alone. Thousands of Canadians are living with, or supporting someone affected, hydrocephalus or spina bifida. Sharing our experiences brings us closer together, provides valuable insights and inspires us with the courage needed to be our best.
If you would like to share your personal story to help someone feel less alone, we would love to help you. Contact us at info@hydrocephalus.ca to find out how.
Read and share these incredible stories of those in our community:
These personal stories are in PDF format and will open in a new tab/window.
Read Steve's Story
Personal Stories Troy cvr
Read Troy's Story
Personal Stories Jordan cvr
Read Jordan's Story
Personal Stories Steven cvr
Read Steven's Story
Personal Stories Lorna cvr
Read Lorna’s Story
Personal Stories Jackson cvr
Read Jackson’s Story
Personal Stories Karen cvr
Read Karen’s Story
Personal Stories Katty cvr
Read Katty’s Story
Personal Stories Gilda FINAL mar6
Read Gilda’s Story
Personal Stories newloves mar6
Read The Newlove’s Story
Personal Stories Amy and Emma maar6
Read Amy & Emma’s Story
Personal Stories Hailey no ask 1
Read Hailey’s Story
Personal Stories Clara Stel
Read Clara’s Story
Danny and Em rev2020
Read Spotlight Story
Humphreys Interview
Read Dr. Humphrey’s Story
Personal Stories SB Bev Burdeyney
Read Beverley’s Story
Waawaate Hydrocephalus
Read Waawaate’s Story
Personal StoryMeaghan and Louie the Dog Hydrocephalus 2
Read Meaghan’s Story

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