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Personal Stories

Kerri, Ryleigh, and Olivia: A family’s story By Mary Dufton...

Kerri Chevrier has two young daughters with very different needs. Six-year-old Ryleigh was born premature with hydrocephalus and additional health challenges, while five-year-old Olivia was born healt...

23rd September 2024
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Caregiver Series with Recreational Respite and Rexall Care Network – registration is now closed...

Caregiver Series Our Caregiver Series is a peer-led series online 5 session group hosted by Recreational Recite and sponsored by Rexall Care Network. The Canada wide program offers caregivers a [&hell...

11th September 2024
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Amber Constable: Passionate Learner By Mary Dufton...

Amber Constable was born with spina bifida and hydrocephalus as well as hearing loss. A passionate learner, Amber has developed strategies to manage her medical conditions. The 37-year-old lives with ...

26th August 2024
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Hugs and Smiles Photo Contest 2024...

Get your camera’s ready! Whether its a selfie or a hug with someone in your household......

16th July 2024
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Phil Bronsther: Adapting to Change...

By Mary Dufton Retired chef and caterer Phil Bronsther has only lived with hydrocephalus for about two years. The 73-year-old Ottawa resident is still new to the condition’s challenges. Two [&hellip...

15th July 2024
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Amanda and Meredith: their unique bond, by Mary Dufton...

Twin sisters Amanda and Meredith Cullen have very different lives but share a deepconnection.Amanda and Meredith were both born prematurely at 26 weeks. While Meredith wasborn healthy and was a [&hell...

24th June 2024
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Troy Chandler: Making Connections and Making a difference By Mary Dufton...

Troy Chandler was leading a full and busy life when things changed dramatically. He had a seizure caused by pressure in his brain. A CT scan confirmed he had hydrocephalus. […]...

16th May 2024
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A Family’s Story Of Challenges, Hopes And Triumphs by Mary Dufton...

Ottawa residents Ashley McKellar and Ryan Haynes were full of anticipation after learning that they would be having a son. Ashley’s first pregnancy was going well and as expected. Her […]...

18th April 2024
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Personal Stories

You are not alone. Thousands of Canadians are living with, or supporting someone affected, hydrocephalus or spina bifida. Sharing our experiences brings us closer together, provides valuable insights and inspires us with the courage needed to be our best.
If you would like to share your personal story to help someone feel less alone, we would love to help you. Contact us at info@hydrocephalus.ca to find out how.
Read and share these incredible stories of those in our community:
These personal stories are in PDF format and will open in a new tab/window.
Read Steve's Story
Danny and Em rev2020
Read Spotlight Story
Humphreys Interview
Read Dr. Humphrey’s Story

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