Research

Hydrocephalus Canada supports research that will improve the quality of life for all individuals with hydrocephalus and/or spina bifida and their families. We work in partnership with hospitals, rehabilitation centres, universities and other research facilities by:
Hydrocephalus Canada Research Priorities
Hydrocephalus Canada chooses to play a role in facilitating research through a stronger presence in the research community and by influencing the creation of a research agenda (international and national) through increased collaboration with various stakeholders.
The following areas have been identified as important research priorities:

Comprehensive Research Experience for Medical Students (CREMS) Summer Research Program

The Comprehensive Research Experience for Medical Students (CREMS) Summer Research Program provides opportunities each year for medical students enrolled at the University of Toronto to participate in a full-time summer research project between their first and second year, or second and third year of medical school, under the supervision of a faculty mentor. 

The program runs for 10 -12 weeks and the student works on a research project on a full-time basis. Submitted projects are reviewed and scored by the CREMs adjudication committee and are offered to the supervisor/projects with the highest scores.

Attached please find the Impact reports on the research that has been undertaken to support the advancement of medicine for those impacted by spina bifida and hydrocephalus.

Throughout The Years, Hydrocephalus Canada Has Partnered on Research Projects with Researchers and Organizations

  • Dr. Amy McPherson
  • Dr. Sally Lindsay
  • CanChild Centre for Childhood Disability Research
  • McMaster University
  • The Hospital for Sick Children
  • University of Toronto Research (other branches)
  • IWK Health Centre Research
  • Dr. Maureen Dennis
  • Brain Injury Canada
  • Dawn Canada
  • CIHR
  • Neil Squire Society
  • OCAD University
  • Dr. Mark Hamilton
  • Adult Hydrocephalus Clinical Research Network
  • Bloorview Research Institute
  • McGill University
  • Neurological Health Charities Canada
  • Ontario Brain Institute
  • Association de spina-bifida et d’hydrocéphalie du Québec
  • Université du Québec à Trois-Rivières
  • Université Laval
  • Spina Bifida Association of America
  • Dr. Michael Cusimano
  • St. Michael’s Hospital
  • Dr. Anne Berndl
  • Dr. Julia Kfouri
  • Sunnybrook Health Sciences Centre
  • Dr. Jan W. Gorter
  • York University
  • Canadian Disability Participation Project
  • SSHRC

Study topics have included:

  • Aging in Persons with SBH
  • Youth Healthcare Transitions
  • Sexuality of Youth with Physical Disabilities
  • SB Assessment of Neurobehavioural Development International-SANDI
  • Bowel Management in SB
  • Neurosurgical Patient Perspectives on Evaluation of Residents in Competence by Design Education
  • Barriers to Access of Pregnancy Care for Women with SB
  • Trends among Canadian Youth with Physical Disabilities
  • Exploring the Complexities of Weight Management Care for Children with Spina Bifida : A Qualitative study with children and parents
  • Healthy and Productive Paid Work for Youth with Disabilities-HAPPY
  • What are the Mental Health and Wellness Needs of Young Adults with Spina Bifida?
  • The Meaning of Health and Wellness in Adolescents and Youth with Spina Bifida
  • Discrimination, ableism and racism hurt but inclusion can heal: Listening to the intersectional lived experiences of youth with disabilities and co-creating solutions
  • Genetics of spina bifida