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Research

Hydrocephalus Canada supports research that will improve the quality of life for all individuals with hydrocephalus and/or spina bifida and their families. We work in partnership with hospitals, rehabilitation centres, universities and other research facilities by:
  • Participating in focus groups,
  • Distributing information about research projects through our newsletters,
  • Including information about research projects on our websites,
  • Endorsing research projects to possible research participants,
  • Advocating for more government funding for research,
  • Providing letters of support to other funders.
Evaluation of a tool on workplace disability disclosure discussions for youth...

Are you a youth or young adult with a disability? Consider participating in a study evaluating a toolkit that was co-developed with youth focusing on disability disclosure and workplace accommodations...

11th May 2022
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Shape the Future of Brain Research in Canada​...

The Canadian Brain Research Strategy (CBRS) is looking for 30-40 people with lived experience with brain conditions to include their feedback into the development of the strategy....

13th April 2022
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Understanding the Sexuality of Youth with Physical Disability Using Art (SYDA) Study...

Are you a young person with a physical disability who wants to talk about sexuality?...

15th April 2021
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What Patients Value in Neurosurgeons...

Researchers at St. Michael’s Hospital invite you to participate in a questionnaire on what patients value in their neurosurgeon......

01st February 2021
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U of T Crems Program...

CREMS is a research program, unique to the University of Toronto, that allows students to gain extracurricular......

15th December 2020
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Reproductive Health: Sexual Health and Pregnancy Experiences of Women with Spina Bifida: A Qualitative Study...

REPRODUCTIVE HEALTH, SEXUAL HEALTH, AND PREGNANCY EXPERIENCES OF WOMEN WITH SPINA BIFIDA: A QUALITATIVE STUDY......

15th December 2020
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Hydrocephalus Canada Research Priorities
Hydrocephalus Canada chooses to play a role in facilitating research through a stronger presence in the research community and by influencing the creation of a research agenda (international and national) through increased collaboration with various stakeholders.
The following areas have been identified as important research priorities:
  • Better shunts
  • Better alternatives to shunts
  • Better/faster diagnosis of normal pressure hydrocephalus
  • Better hydrocephalus management – better testing of shunt function/malfunction
  • Causes of congenital hydrocephalus
  • Long term effects of hydrocephalus on social skills in adults
  • The management of bladder and bowel incontinence
  • The social isolation of young persons with spina bifida
  • Better infection management
  • The genetics of mothers with spina bifida

Funding for this website provided by Ontario Trillium Foundation

Charitable Registration No: 10799 9310 RR0001

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