Ghofran Alyass’ Story of Hope and Determination

By: Mary Dufton Ghofran Alyass’ experience of being born with spina bifida and hydrocephalus might seem familiar to most of us – the many surgeries and hospitalizations; time spent away […]
Friendships Like No Other: Tammy, Jenn, Quinn and Jackson

By: Mary Dufton Friendships are key to our physical and mental well being. As parents of adolescent sons with hydrocephalus, Tammy Selkirk and Jenn Fraser have an especially close connection. […]
SWWR 2

The world is a very different place right now. But one thing hasn’t changed.
Frequently Asked Questions on the Development of the Canada Disability Benefit Regulations

Below is a document that provides answers to frequently asked questions (FAQs) on the new Canada Disability Benefit. The Canada Disability Benefit Act received Royal Assent on June 22, 2023. The […]
Nancy Dickinson Personal Story

By: Nancy Dickinson I am a mother with 4 adult kids and 6 wonderful grandkids. Before retiring, I taught downhill skiing and ran […]
Ingrid Exner: Adaptive Yoga Teacher and Self-Proclaimed Hydrocephalus Warrior

By: Mary Dufton Since adolescence, Ingrid Exner has practised yoga for its many benefits. She now teaches it via Zoom to individuals with spina bifida and hydrocephalus so that they […]
Free Webinar – Idiopathic Normal Pressure Hydrocephalus (INPH) 101

Idiopathic Normal Pressure Hydrocephalus (INPH) 101- The Basics Join us on October 23, 8 pm ET via ZOOM for Hydrocephalus Canada’s Joint Webinar with Association de spina-bifida et d’hydrocéphalie du […]
Facing Everyday with Strength and Courage

Facing Everyday with Strength and Courage Karen Howard is such a hero. In 2007, she successfully completed the 21.1 kilometer Half Marathon in Prince Edward County. In 2013, Karen completed […]
My Husband’s Journey with Normal Pressure Hydrocephalus

By: Lorraine Newlove My husband Frank’s journey began in the Spring of 2011. We had been retired by then for nearly 19 years. We try to stay active and enjoy […]
Open Letters to Mom

By: Amberlea Wouda This is Claire. Our beautiful daughter. Our second born, planned for, always wanted and incredibly special little miracle. When people look at her they often don’t even […]