Kai’s story: Learning to live with uncertainty while trusting her gut Written by Mary Dufton

Kai Cote only heard of hydrocephalus on medical dramas and thought it only affected infants. However, when she was about 20, she began having double vision, eye misalignment and headaches […]
Emma’s Story of Strength, Perseverance and Resilience By Mary Dufton

Twenty-year-old Emma St. Aubin who was born in Niagara Falls Ontario, is a passionate advocate for people who live with hydrocephalus. She is also equally passionate about athletics, having participated […]
Linda Benard: Always on the Go By Mary Dufton

Linda Benard was born with spina bifida, but never let it dictate her life or limit her options. The 77-year-old Langdon, Ontario resident has been active her entire life. She […]
Your Devices, Your Rights Petition

Sign and share. Help, Support and Sign. Join us in calling on the Ontario Government to modernize the Assistive Devices Program and make basic and essential medical equipment accessible for […]
Ersin Omay: Looking on the Bright Side of Life By Mary Dufton

Ersin Omay was not born with hydrocephalus but developed it after falling from a third-floor balcony at age three. The 49-year-old Mississauga resident loves the outdoors and is an avid […]
Stress Busting Strategies To Reduce Holiday Stress by Ingrid Exner
The holidays are just around the corner. Neighbours have hung festive lights and the annual Christmas parades-city wide-have shared music and memories of yuletides past and present. Festive Songs are […]
Megan, Carson and Jett: Never Giving up Hope by Mary Dufton

Megan and Carson Adams had never heard of hydrocephalus until they sought treatment for their seven-month-old son, Jett. The couple lives in Elmsdale, PEI with Jett who turns two in […]
Meet The Van Heerden Family

In the serene beauty of Alberta, the Van Heerden family lives a life full of love, laughter, and resilience. Blessed with three children, this family thrives on outdoor adventures—camping, hiking, […]
Looking Through the Lens- The Healing and Self Expression of Photo Therapy by Ingrid Exner

Photo credit Ingrid Exner I have been taking photographs for many years. I take photos as one of my coping mechanisms to help control pain and help reduce other symptoms […]
Reflections on positivity and Gratitude: Judy’s story by Mary Dufton

Judy Feeley has had hydrocephalus her entire life but was not diagnosed until fourteen years ago. Despite lifelong health issues, including celiac disease, the 56-year-old resident of Welland, Ontario, managed […]