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For a chance to join the Toronto Tasters Club and connect and socialize with other individuals living with spina bifida and/or hydrocephalus. RSVP to Nicole Neeson by phone or text at 647-807-4348 to reserve your spot! DATE: Wednesday, April 9th, 2025, WHERE: East Side Mario's 12 Lebovic, Toronto TIME 6:00PM - 8:00PM Don't forget to […]
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Sign up for our free sessions with Ingrid Exner, certified yoga teacher & person with lived experience. Expect movements that work for every body, including yours! Sessions run twice a month on Wednesday evening from 7-8 pm ET. We encourage you to turn on your cameras so participants can see each other and experience the […] |
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Navigating Primary Care for Adults with Spina Bifida and HydrocephalusDate & Time: April 10, 2025, 7:00 PM Join us for an insightful webinar exploring the unique primary care considerations and aging challenges faced by adults living with spina bifida and hydrocephalus. Learn effective strategies for preventative care, practical self-management tools, and advocacy tips to empower […]
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Join us first SHYNE meeting for youth and young adults with hydrocephalus or spina bifida to connect socially. Each month, we will have a topic of discussion, plus other fun activities to take part in. If you are between the ages of 16 to 29, sign up today! We look forward to seeing you at […] |
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Let’s Move Together! Functional Fitness for Everyday Life Staying active is about more than just exercise—it’s about feeling strong, capable, and connected. Functional fitness helps you and your family maintain mobility, independence, and overall well-being in ways that fit your daily life. Join our Hydrocephalus Parent Support Group for a friendly and supportive conversation about […] |
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NEW DATE The Ottawa Taster’s Club will be meeting on Thursday, April 17, 2025, Big Rigg Brewery & Restaurant, 1980 Ogilvie Rd.. Join them for lunch at 1 2:00 PM, for a chance to connect and socialize with other individuals living with spina bifida and/or hydrocephalus. RSVP to Mary Dufton by phone at 613-698-8173 or by […]
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💙 Stay Strong, Stay Mobile: Join Our Adult Spina Bifida Support Group! 💙 Maintaining your functional fitness is key to your health, mobility, and overall well-being. But what exactly is functional fitness, and how can it benefit you? Join our Adult Spina Bifida Support Group to explore how movement, flexibility, and strength can support your […] |
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Dear community members, Researchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London, plus their caregivers/support people. What’s involved? Online survey (patient […] 
Help Researchers Improve Access to Psycho‑Educational Assessments Are you a parent or caregiver who …** Sought a psycho‑educational assessment for a child/teen in the last 10 years Whose child attended an Ontario school at the timeIf yes, University of Toronto researchers would love to hear about your experience! What’s Involved 15‑20 minute online survey (Qualtrics) about the process and any […] |
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Ready to yoga? Sign up for our free sessions with Ingrid Exner, certified yoga teacher & person with lived experience. Expect movements that work for every body, including yours! Sessions run twice a month on Wednesday evening from 7-8 pm ET. We encourage you to turn on your cameras so participants can see each other […] |
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Over 10 million Canadians are living with neurological conditions, impacting every aspect of their lives and costing the Canadian economy an estimated $61 billion annually—more than cancer and cardiovascular disease combined. The last comprehensive study, Mapping Connections, was conducted over a decade ago. With Canada's aging and diversifying population, and in the wake of the […] |
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💙 Adult Hydrocephalus Support Group – April 30 @ 5:30 PM EST 💙 Join us for the Adult Hydrocephalus Support Group on April 30th as we explore Functional Fitness & Exercise for individuals with hydrocephalus and shunts. Learn the do’s and don’ts to stay active, improve your strength, and promote overall well-being—safely. 💪 ✅ Understand […] |
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For youth & young adults with hydrocephalus or spina bifida (ages 16 – 29) Cold snaps, heat waves, humidity swings—weather shifts can trigger headaches, fatigue, shunt discomfort, and mobility hurdles. In this peer‑led SHYNE (Supporting Hydrocephalus & spina bifida Youth Network for Empowerment) meetup, we’ll swap real‑life strategies for things like: Managing pressure‑related headaches and joint pain Staying active […] |