Amy St. Aubin is a graduate of Brock University and a resident of the Niagara Region in Ontario. She has worked for over 20 years in the Criminal Law Division of the Ministry of the Attorney General, where she applies critical thinking and strong communication skills as a Case Management Coordinator. Amy was the Leader and a major contributor to the research, planning, implementation and ongoing management of an alternative court designed to address criminal behavior due to addiction. Amy and her husband have two children. Their oldest, Emma, was born with hydrocephalus due to a brain tumour. They are very thankful for the ongoing support og Hydrocephalus Canada, especially during difficult times involving numerous shunt revisions. Amy is driven to spread awareness and contribute in making a positive impact within the organization and all those whom they serve.
Stephen Rex lives in Calgary and is a senior, strategic, service oriented human resources leader and graduate from Queen’s University (Bachelor of Commerce, Honours). He has spent over 20 years working across Canada with leading organizations such as, Canadian Airlines, Air Canada and Labatt Breweries. He is passionate about the human resources function and has broad HR, performance management, pension/benefit and senior level experience. He is a Chartered Professional in Human Resources, and holds the CPHR designation, has studied and continues to pursue coursework with the Institute of Corporate Directors (ICD), and has prior board experience within the non-profit, healthcare sector currently operating as a Board Member, and Chair of the Human Resources Committee. Stephen, has a great interest and commitment to contribute to the future success of Hydrocephalus Canada and its Core Purpose to empower those impacted by hydrocephalus and spina bifida to experience the best life possible.
Over her 20-year career in the contingent staffing and human capital space, Eileen Gittens has built a reputation as a people-first, passionate and inspirational leader who drives both growth and impact. In her current role as Vice President at Adecco Canada and in prior roles, she has successfully expanded markets across Ontario, Atlantic and Western Canada, developed innovative workforce strategies, and built resilient, high-performing teams that deliver exceptional experiences to both clients and associates. Eileen has consistently championed inclusive workplaces, leading with authenticity and courage to create environments where both businesses and people thrive.
Beyond her executive role, Eileen is deeply committed to advancing equity and shaping future-ready talent. She serves as a judge and member of the Women’s Executive Network (WXN), leads Adecco’s Black North Initiative Employee Resource Group, and has volunteered her time to strengthen education initiatives through her work on a Program Advisory Committee. Known for her ability to see the potential in others and bring out their best, Eileen continues to inspire through her belief that true leadership is rooted in helping people find their purpose, pushing yourself outside of your comfort zone and trusting in the power of your people. Eileen is married and is a mom to 3 young adults and a curious dog. When not at work, she loves going on long walks, exploring new cuisine and has an incredible love for desserts.
Janitha Shanmugarajan is based in Toronto and is a strategic partnerships leader at the KITE Research Institute, University Health Network. A graduate of the University of Toronto, she cultivates collaborations across healthcare, research, and technology to improve accessibility and drive innovation. She brings expertise in advancing health innovation through partnerships, strategy, and collaborative program design.
As the parent of a child with spina bifida, Janitha’s lived experience inspires her advocacy and commitment to supporting families in this community. She is honoured to join Hydrocephalus Canada’s Board of Directors, where she hopes to combine her professional expertise and personal journey to strengthen awareness and impact.
Amanda Amesse is the Outreach Manager at True North Aid, currently residing and working in Kingston/Katarokwi, Ontario, and lives with Spina Bifida. She is a 2018 graduate of St. Lawrence College’s Behavioural Psychology program. She has worked in the non-profit and social services sector for over 10 years, including with the John Howard Society, the Métis Nation of Ontario, Kingston Interval House, and Addictions and Mental Health Services – KFLA. Amanda’s work with remote communities began in 2017 when she and her partner started an initiative to collect and ship medical supplies and mobility aids to the Weeneebayko Area Health Authorit. Since then, she has been involved with True North Aid as a volunteer and later employed as the Outreach Manager. Her role as Outreach Manager focuses on relationship and capacity building, while expanding True North Aid’s reach and supporting community-led projects.
Amanda is an inclusion coach for Kingston Employment and Youth Services, which focuses on diversity, equity, and inclusion training. Amanda is also an advisor on the Municipal Accessibility Advisory Committee for the city of Kingston. She is working on her master’s degree in Philanthropy and Non-Profit Leadership at Carleton University and is expected to graduate in 2028.
In her spare time, she enjoys helping rescue wildlife, kayaking, and spending time outdoors, as well as board gaming, Star Wars, and socializing with family and friends.
Laura Gatensby is based in Brampton, ON an in addition to having been personally touched by hydrocephalus, brings a long career of work in an with the non-profit sector, both as a fundraiser and participant during her decade of entrepreneurship. As a professional fundraiser and non-profit manager, she worked with Women’s College Hospital Foundation and Harbourfront Centre, as well as working as a consultant to non-profit fundraising campaigns while at Arts marketing Services. Her volunteer experience spans both Board and Committee roles (Association of Fundraising Professionals GTA Chapter, AFP Foundation for Philanthropy Canada) and leadership in grassroots fundraising initiatives (Heart & Stroke Foundation, Canadian Breast Cancer Foundation, Arthritis Society). Laura looks forward to using her experience to make a positive impact at Hydrocephalus Canada.
Dr. Barton is the Vice President for Finance & Administration at Shepherd University. He holds a BBA in Accounting from Florida Atlantic University, an MBA from Regis University, and a Doctor of Education from the University of New England. He has nearly two decades of experience as a financial administrator and is adept at establishing systems, procedures, and controls to optimize information flow and transparency in decision making. He has a track record for leading efficient, collaborative, multi-generational teams in supporting fiscally-strong higher education institutions. Dr. Barton has had a long standing relationship with Hydrocephalus Canada and is a previous recipient of the Dr. E. Bruce Hendrick Scholarship. He lives in Pennsylvania with his wife and two children.
Dr. Mark G. Hamilton, MDCM, FRCSC, FAANS, is from the University of Calgary, Cumming School of Medicine, Department of Clinical Neurosciences, Division of Neurosurgery. Dr. Hamilton did his Bachelor of Science degree (with distinction) at the University of Toronto and the graduated from McGill University Medical School in 1983. He did his Neurosurgery Residency at the University of Calgary and received his FRCSC in 1991. He did Fellowship training in the cerebrovascular, skull base, and pediatric Neurosurgery at the Barrow Neurosurgery at the Barrow Neurological Institute in Phoenix Arizona, and joined the University of Calgary Department of Clinical Neurosciences in 1994, where he is currently a Professor of Neurosurgery with additional appointments in the Department of Surgery and the Department of Pediatrics. He was the Chief of the Division of Pediatric Neurosurgery from 2002-2011. He is head of the University of Calgary Adult Hydrocephalus Program, which he established with the University of Calgary Adult Hydrocephalus Clinic in 2008. Dr. Hamilton is the chair of the Adult Hydrocephalus Clinical Research Network (AHCRN), which has eight clinical sites in three countries, Past-President of the Hydrocephalus Society (International Society for Hydrocephalus and Cerebrospinal Fluid Disorders (ISHCSF)), a member of the Board of Directors of the Hydrocephalus Association (HA), Vice-Chair of the Medical Advisory Board (MAB) of HA, a member of the Board of Directors of Hydrocephalus Canada, and a member of the Medical Advisory Board of Hydrocephalus Canada. He has been a past co-chair of the Journal of Neurosurgery Editorial Board and is a member of the Editorial Boards of Neurosurgery and the Canadian Journal of Neurological Sciences. His current main clinical and research interests are diagnosing and managing hydrocephalus in adults.
Nicolette Leonardis is an entrepreneur, advocate, and lifelong learner dedicated to advancing inclusion, representation, and understanding for people affected by hydrocephalus, spina bifida, and other invisible conditions. She holds a degree in Philosophy, grounding her leadership in empathy, critical thinking, and a belief that meaningful progress begins with awareness and compassion.
As the Co-Founder and President of Vertical Impression, North America’s leading elevator media company, Nicolette has redefined how technology and storytelling intersect in public spaces. She also serves on the DPAA WE.DOOH leadership board, supporting women’s empowerment and representation in the media and technology industries.
Nicolette is deeply passionate about inclusive representation — in media, in advocacy, and in life. Supporting individuals and families impacted by hydrocephalus and spina bifida aligns with her long-term mission to amplify underserved voices and bring visibility to invisible disabilities. She is profoundly grateful to have a healthy child, and that gratitude fuels her commitment to advocate for those navigating illness or systemic barriers.
Her goal is to use her voice, experience, and platform to help drive meaningful progress — so families can spend less time fighting for support and more time simply living.
Ms. Clydesdale is a dynamic advertising executive based in Toronto, skillfully balancing her busy career in outdoor advertising with a vibrant personal life. As a proud mom of twin boys, she’s all about creating memorable experiences for her family.Her passion for the hydrocephalus board is deeply personal. Her younger brother Adam has had hydrocephalus since birth, and Natalie spent much of her teenage years by his side at SickKids Hospital. This experience drives her commitment to advocating for those affected by the condition.Natalie and her family also love their lakeside cottage, where they enjoy nature and outdoor adventures. In her career, she’s played a key role in growing an outdoor advertising agency from the ground up, working with her mom and career mentor.Known for her leadership and mentorship, Natalie is dedicated to guiding the next generation of advertising pros. Her interests—family, horses, golf, and the great outdoors—reflect her well-rounded approach to life and her heartfelt dedication to the hydrocephalus community.
Mr. McGrade has a long history with Hydrocephalus Canada and his current volunteer activities are deeply rooted in accessibility and mental health advocacy. He has also been a Big Brother with the Reach Out Centre for Kids, mentoring teens facing mental health challenges. Professionally, for the past 5 years he has lead Scotiabank’s Accessibility Employee Resource Group as the chairperson leading national meeting discussion on inclusion and accessibility initiatives across the bank system. Notable achievements include leading a partnership with Microsoft to highlight accessibility features during the Microsoft Office 365 rollout at the bank. Mr. McGrade and his family have supported Hydrocephalus Canada since 2010 at our annual golf event, to raise funding for research and support of those living with the conditions. This event holds a special place in his heart as it involves his love of golf and supporting a cause that he cares deeply about. He is enthusiastic to contribute to further the organization’s mission and support individuals living with spina bifida and hydrocephalus.
Mr. Sinjari is a committed public member residing in Windsor, Ontario, with over 18 years of experience in the automotive finance industry. Currently serving as Director of Finance, Sam has established himself as a dynamic leader with a strong commitment to both professional excellence and community service.Sam is deeply passionate about making a positive impact in his community. His involvement with various local organizations, such as the Hotel Dieu Grace Healthcare Foundation and the College of Audiologists and Speech-Language Pathologists of Ontario (CASLPO), underscores his dedication to addressing critical social issues. Additionally, Sam is the host of “Empowering Kindness,” a local radio show where he highlights the work of non-profits and community champions, aiming to inspire and motivate others to contribute to social good.Beyond his professional and media endeavors, Sam’s philanthropic efforts are both significant and impactful. He has played a pivotal role in planting 50 large trees at Gignac Park, enhancing the local environment, and has been instrumental in providing food for low-income families through the Unemployed Help Centre and Downtown Mission. His commitment extends to supporting organizations such as The Salvation Army and Hand and Hand Support, where he consistently works to better the lives of those in need.As a well-known motivational speaker, Sam regularly shares his passion for community building and personal development, encouraging others to pursue positive change. His unwavering commitment to creating lasting improvements and ensuring better opportunities for all members of the Windsor-Essex community has earned him recognition as a Community Champion by the Odette School of Business at the University of Windsor. Sam’s experience, leadership, and passion for service make him a valuable candidate for the Hydrocephalus Canada Board of Directors. He is eager to contribute his expertise and dedication to further the organization’s mission and support individuals living with hydrocephalus and spina bifida.
After graduating from medical school in June 1998, Dr. Riva-Cambrin completed his neurosurgery residency at the University of Toronto, Canada. He obtained a Masters of Science in Clinical Epidemiology from the University of Toronto under the direction of Dr. James Drake. Dr. Riva-Cambrin completed a postgraduate fellowship in pediatric neurological surgery at The Hospital for Sick Children, University of Toronto.
Dr. Riva-Cambrin’s clinical interest is pediatric neurosurgery specifically including the treatment of hydrocephalus, craniofacial surgery, endoscopy, and clinical epidemiology. He is the Scientific Director of the Canadian Pediatric Neurosurgery Study Group (CPNSG). He is also a Principal Investigator within the Hydrocephalus Clinical Research Network (HCRN). Recent research interests include comparing the outcomes between ETV+CPC and shunts in the infant hydrocephalus population, predicting success in ETV+CPC treated infants, and exploring the relationship between ventricle size and neuropsychological outcomes in older children treated for hydrocephalus. He has been a Principal Investigator or co-investigator on seventeen grants and has over 150 peer-reviewed publications mostly focused on pediatric hydrocephalus.
Dr. Riva-Cambrin has joined the faculty at the University of Calgary in 2015 from his previous role at the University of Utah. He is a Professor of Neurosurgery, the Residency Program Director for the neurosurgery training program, the Co-Educational Director of ACHRI and the largest grant in the history of Alberta “One Child Every Child”. Lastly, he has just been awarded the Kinsmen Chair of Pediatric Neurosciences at the Alberta Children’s Hospital. Dr. Riva-Cambrin has also recently taken on the role of Chair, of Hydrocephalus Canada’s Medical Advisory Board.