Hydrocephalus Canada, a member of Neurological Health Charities Canada (NHCC), is excited to announce a renewed focus on a National Population Health Study of Neurological Conditions. This initiative aims to prioritize knowledge and comprehensive health data on the incidence, prevalence, and impacts of neurological conditions, building on the success of the previous study from 2009 to 2013. Recognizing the evolving landscape of neurological health, NHCC plans to involve individuals with lived experiences from the start.
The previous study, Canada’s first-ever population health study of neurological conditions, provided invaluable insights and informed policy and investment decisions through its report, Mapping Connections. This report is still in use by the Public Health Agency of Canada and Health Canada.
We are at a pivotal moment where improved understanding of neurological health can significantly impact healthcare planning and support for Canadians. NHCC proposes to collaborate with the federal government to develop a renewed survey.
We seek allies in government, elected MPs, influential leaders within the public and charitable sectors, and other stakeholders to strengthen our position and improve the well-being of those affected. If you can help, please contact us at sbeaudoin@hydrocephalus.ca
To read NHCC’s Submission to the Federal Finance Committee’s 2025 Pre-Budget Consultation, visit our website here.
A Renewed Population-Level Neurological Health Study
In 2008, NHCC led Canada’s first comprehensive health study on neurological conditions, securing $15 million to produce the groundbreaking report Mapping Connections. Released in 2014, this report remains a crucial resource for the Public Health Agency of Canada and Health Canada, informing chronic disease surveillance and policy decisions. Mapping Connections informs decision- making on policy and investments.
NHCC is now embarking on an ambitious new mission to advocate for the millions of Canadians and their families by updating population-level health data on the incidence, prevalence, and impacts of neurological conditions. Our goal is to enhance the wellbeing of those affected by these conditions.
- We invite you to read Read NHCC’s Submission to the Federal Finance Committee’s 2025 Pre-Budget Consultation.
- We are seeking allies within the government, including elected MPs, influential figures, and leaders in the public and charitable sectors. Your support can significantly strengthen our efforts. If you can assist, please contact us at info@hydrocephalus.ca.
- NHCC is asking the Government of Canada to immediately commit to developing a Canadian Action Plan for Brain Health. This plan aims to improve the lives of the one in three Canadians living with brain conditions and their families. Details of this roadmap are outlined in our position paper, Canadian Action Plan for Brain Health: Charting the Course in a Changed World and in our brief to the Standing Committee on Finance here.
- We also call for the creation of a National Neurological Strategy for Canada to address the knowledge gaps and needs of the millions of Canadians living with neurological diseases, illnesses, or injuries.
- Please visit the NHCC website to learn more about our initiatives and access our newsletters.
