Welcome to our new Bilingual Webinar Series in Partnership with Association de spina-bifida et d’hydrocéphalie du Québec

Welcome to the RISE UP Education Series hosted by Hydrocephalus Canada and Association de spina-bifida et d’hydrocéphalie du Québec. This webinar series is a collaboration that aims to overcome the language barrier of our two communities, French & English Canadians, to access information. Together, they can benefit from the expertise of health specialists in the care of people with spina bifida and hydrocephalus.
*If you miss a webinar the recording will be available here or on our YouTube Channel at


“Pregnancy in people with spina bifida, introduction of a new guideline.”

Dr. Anne Berndl, from Sunnybrook Research Institute discusses health issues for girls and women with spina bifida & hydrocephalus focusing on pregnancy and childbirth.
Thank you to everyone who attended. If you were not able to attend, you can watch the video of the webinar on our Youtube channel. Just click the button below:
If you would like a copy of Dr. Berndl’s presentation slides, please send an email to info@hydrocephalus.ca and we will send them to you.


“Understand the Bladder to Live Your Best Life”

Dr. Julie Franc-Guimond is passionate about the bladder; listening to her will make you want to become a urologist. During this webinar, she will help you better understand neurogenic bladder-related abnormalities and treatment options, learn more about surgeries to treat neurogenic bladder, and become familiar with the short, medium and long term issues of neurogenic bladder. Dr. Julie Franc-Guimond has been practicing pediatric urology at CHU Sainte-Justine since 2004.
Thank you to everyone who attended this enlightening webinar. If you were unable to attend, the presentation was recorded and will soon be available on our YouTube channel. You will be able to access it here. Stay tuned…


“Nutritional Management of Neurogenic Bowel and Bladder”

June 1, 2021 at 5 p.m. EST.
In this webinar, Jackie will explain the role nutrition plays in managing neurogenic bowel and bladder. She will then delve deeper into the different types of fibre and the roles they play in the different types of neurogenic bowel and share practical strategies for implementing them into your life.
Jackie Silver, MHSC, RD is a Registered Dietitian in Toronto with a virtual private practice and consulting business, Jackie Silver Nutrition, that focuses on nutrition for adults and children with physical or intellectual disabilities. She graduated from Ryerson University with a Masters of Health Science in Nutrition Communication and also has further training in mindful eating which she incorporates in her client work. Jackie is passionate about empowering people of all abilities to live healthier lifestyles. In her spare time, she enjoys cooking, baking, meditating, journaling, being outdoors, traveling, and spending time with family and friends.
You can send your questions for Jackie, in advance, to us at info@spina.qc.ca and info@hydrocephalus.ca
This webinar will be presented in English with simultaneous translation to French.