Get Involved
Get Involved With Community Events for Hydrocephalus & Spina Bifida Celebrate Live Dream Walk, Wheel or RunJoin this inspiring event on June 8, 2025, at Downsview Park in Toronto, to […]
Kyleigh Morgan: Living her dream of becoming a nurse By Mary Dufton
Kyleigh Morgan developed hydrocephalus as an infant from an inoperablebenign brain tumour. After being a patient most of her life, 19-year-oldKyleigh dreams of becoming a registered nurse. She refuses to […]
15 years of Jackson’s Hope Fore Hydrocephalus
Jackson’s Hope Fore Hydrocephalus Partner’s With Annual Hydrocephalus Canada’s Charity Golf Event Jackson’s journey with hydrocephalus began when he was just four months old. Hydrocephalus, a condition caused by a […]
Kai’s story: Learning to live with uncertainty while trusting her gut Written by Mary Dufton
Kai Cote only heard of hydrocephalus on medical dramas and thought it only affected infants. However, when she was about 20, she began having double vision, eye misalignment and headaches […]
Emma’s Story of Strength, Perseverance and Resilience By Mary Dufton
Twenty-year-old Emma St. Aubin who was born in Niagara Falls Ontario, is a passionate advocate for people who live with hydrocephalus. She is also equally passionate about athletics, having participated […]
Linda Benard: Always on the Go By Mary Dufton
Linda Benard was born with spina bifida, but never let it dictate her life or limit her options. The 77-year-old Langdon, Ontario resident has been active her entire life. She […]
Your Devices, Your Rights Petition
Sign and share. Help, Support and Sign. Join us in calling on the Ontario Government to modernize the Assistive Devices Program and make basic and essential medical equipment accessible for […]
Ersin Omay: Looking on the Bright Side of Life By Mary Dufton
Ersin Omay was not born with hydrocephalus but developed it after falling from a third-floor balcony at age three. The 49-year-old Mississauga resident loves the outdoors and is an avid […]
Stress Busting Strategies To Reduce Holiday Stress by Ingrid Exner
The holidays are just around the corner. Neighbours have hung festive lights and the annual Christmas parades-city wide-have shared music and memories of yuletides past and present. Festive Songs are […]
Megan, Carson and Jett: Never Giving up Hope by Mary Dufton
Megan and Carson Adams had never heard of hydrocephalus until they sought treatment for their seven-month-old son, Jett. The couple lives in Elmsdale, PEI with Jett who turns two in […]
