Hydrocephalus Canada

Personal Stories

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Uplifting, enlightening and inspiring true stories.

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Personal Stories

Growing up with spina bifida, a birth defect that affects the spine, I was never physically active. I believed my disability excluded me from keeping fit. My peers would ridicule me in gym class because I could not keep up. Their mocking left me self-conscious.

Danny Lamb 2013.jpg

Since I attended my first SB&H meeting in Toronto as a 19 year old Brock Music major from Niagara on the Lake, my life has grown and shifted in ways that I never could have imagined. I’ve conquered some incredibly steep and slippery slopes, and have been places and seen things that most people can only read about. I truly feel blessed, and overwhelmingly grateful. Knock on wood that my luck continues in health and wellness through 2013 and the years that follow.


I know you are hurting and I understand the pain. I know you didn't sign up for this. I know this is the exact opposite of what you dreamt for your life, your family and your baby. I know your scared! That's okay. It is scary. I know you are devastated. That's okay. It is devastating. I know you feel guilty but DON'T!! You did NOTHING TO CAUSE THIS!!!!

Meet my Isaac, a pretty typical two-year-old. He is learning to talk, and he recently started putting his new vocal skills to work on our family’s Thanksgiving scarecrow decoration; he shakes the scarecrow’s hand at bedtime and says, “Miss you!” Isaac also loves to chase his twin, Nathan, play outside and swim.

This story, I’m sure, is one of many told by individuals who not only astonished others but, more importantly, themselves. My name is Anthony Culmone and 17 years ago I was born with a condition known as spina bifida. Until the age of 11 years, my disability was manageable and not very apparent to my peers except for my inability to walk long distances and run as fast as my friends. By age 12, I began to have many unexplained leg breaks that did not heal properly and I could only move around by wheelchair by the time I was 15.