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Dear community members, Researchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London, plus their caregivers/support people. What’s involved? Online survey (patient […] 
🎬 Casting Call: Kids’ Inclusive Sports & Arts Video Series! We’re teaming up with TAP Toronto & Hydrocephalus Canada to create fun videos for schools & YouTube featuring accessible sports & arts programs for kids across Canada! 🏀🎨 A huge thank you to @TorontoFoundation for their generous grant making this possible! 🙏 We’d love to […] 
Date: Ongoing through the holiday seasonLocation: Anywhere across Canada – host your own party or workplace event Turn Your Celebration into Impact This holiday season, skip the gifts and spread the support! Invite your guests to donate to Hydrocephalus Canada instead of bringing hostess gifts, or have your company display QR codes at your event […] |
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🌟 Advocacy: Speak Up, Be Heard! 🌟 What is advocacy and why is it important? From schools to housing, employment, accommodations, and funding, advocacy is a lifelong skill. Explore your advocacy style, share experiences, and learn practical strategies to speak up for yourself. 🗓 When: Wednesday, October 29⏰ Time: 6:30 PM ET💻 Where: Zoom🔗 Register […] |
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🌟 Webinar Alert: Hydrocephalus & Spina Bifida – A Neuropsychological Perspective 🌟 Join Dr. Stephanie L. Leon, clinical psychologist & neuropsychologist (McGill University & University of Ottawa), as she explores the neuropsychological aspects of hydrocephalus and spina bifida across all age groups. Dr. Leon, formerly at Children’s Hospital of Eastern Ontario (CHEO), now in private […] |
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🧘♀️💙 Accessible Yoga with Ingrid 💙🧘♂️ Take some time to stretch, breathe, and relax with a gentle, inclusive yoga session designed for all ages and abilities. Join Ingrid for a calming evening that’s all about movement, mindfulness, and community. 🗓 When: Wednesday, November 5⏰ Time: 7:00 PM ET💻 Where: Zoom🔗 Register here: https://us02web.zoom.us/meeting/register/ekWSnMtbT2WH2I-U45NTRw No experience […] |
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💙 Hydrocephalus & Spina Bifida Parent Support Group 💙 Caregiver Support Night: Sharing Tips & Stories 🗓️ Tuesday, November 11 ⏰ 8:00–9:00 PM (EST) 📍 Online via Zoom Being a parent or caregiver for a child with spina bifida or hydrocephalus comes with both challenges and incredible moments of love and learning. Join us for […] |
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🌟 SHYNE (Supporting Hydrocephalus Youth Network & Empowerment) 🗓️ Thursday, November 13 ⏰ 7:00–8:00 PM (EST) 📍 Online via Zoom 💬 This month’s SHYNE meeting theme: Accessible Technology! 💻✨ Let’s talk about the tech and tools that help make our daily lives more accessible — whether for school, work, or everyday routines. From adaptive devices […] |
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🍕 Ottawa Taster's Club 🍕 Join us for a casual lunch with hydrocephalus and spina bifida friends at Colonnade Pizza 📅 Date: Thursday, November 20, 2025🕛 Time: 12:00 PM📍 Location: 1500 Bank Street (Blue Heron Mall) Please RSVP to Mary Dufton:📞 613-698-8173📧 [email protected] Come enjoy good food and great company! 💛
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💬 Spina Bifida Adult Support Group 🗓️ Thursday, November 20 ⏰ 6:30–8:00 PM (EST) 📍 Online via Zoom November is Bowel and Bladder Month — and we’re opening up an honest, supportive discussion about bowel and bladder health for adults living with spina bifida. From urge incontinence to neurogenic bladder, nothing is off-limits in this […] |
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💧 Adult Hydrocephalus & NPH Support Group 🗓️ Wednesday, November 26 ⏰ 6:30–8:00 PM (EST) 📍 Online via Zoom Even after successful shunting, many individuals with hydrocephalus and NPH experience bowel and bladder challenges. Join us this November as we share practical tips and relaxation exercises to help improve bowel and bladder health. 🌿 Come […] |
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