🧘 Gentle Yoga Session – Yoga for Flexibility Join us for Week 2 of our Gentle Yoga series, focusing on improving flexibility through safe, accessible movement led by Ingrid. This session is designed to help participants gently stretch, reduce stiffness, and support overall mobility and relaxation. This welcoming virtual class is suitable for all experience […]
🌸 SHYNE Group – March Session: Seasonal Organization & Spring Cleaning 📅 Thursday, March 19, 2026 8pm-9pm EST 📍 Online via Zoom Join the SHYNE Group, a supportive community program for youth and young adults ages 16–29 living with spina bifida or hydrocephalus, for our March session focused on seasonal organization and spring cleaning strategies. […]
🧠 Adult Hydrocephalus & NPH Support Group Theme: Changes and challenges as you age with Hydrocephalus and NPH Living with Hydrocephalus or Normal Pressure Hydrocephalus (NPH) can bring new questions and challenges over time. Join our upcoming support session focused on aging well with Hydrocephalus and NPH, while learning practical strategies to maintain independence, memory, […]
♿ Adult Spina Bifida Support Group Theme: Mobility issues and challenges as you age, plus strategies and solutions As adults with Spina Bifida age, mobility needs and daily challenges can change. This upcoming support group session creates space to discuss mobility concerns, accessibility needs, pain management, fatigue, independence, and adaptive strategies that help improve quality […]
🧘 Yoga (All Ages) 📅 April 1 at 7:00 pm EDT🔗Register Here https://us02web.zoom.us/meeting/register/YHwEoCiISAuP8xSFkr0axw Description:Start the month with a gentle, accessible yoga session designed for all abilities. This class supports relaxation, body awareness, and stress relief—important tools at every stage of the medical journey, from diagnosis through ongoing care. No experience needed.
📅 Date: April 9 at 7:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/OZlXYE3iRWK3qPnzEnZifw Event Description:A supportive space for youth and young adults to connect and share their experiences navigating diagnosis, treatment, and growing independence. This session focuses on identity, confidence, and building community with others who understand the journey.
📅 Date: April 14 at 8:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/qKWPpQh8QaWLaLo0VF0Opg Event Description:This parent-focused session explores the evolving journey from diagnosis through treatment and beyond. Connect with other caregivers, share experiences, and discuss how to navigate changing medical needs, advocate for your child, and plan for the future.
🧘 Yoga (All Ages) 📅 Date: April 15 at 7:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/A2zDPmZzQX6mmyusf-3Ozg Event Description:Take a mid-month pause with another calming yoga session. Focus on gentle movement, breathing, and stress reduction to support both physical and emotional well-being throughout your care journey.
📅 Date: April 23 at 6:30–8:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/KNZhRoljROaBTwlXIyV0BA This months topic:A conversation for adults living with spina bifida about how health needs evolve over time. Topics include managing transitions in care, advocating within the healthcare system, and navigating independence and long-term wellness. We are always open to your opinions on support groups topics. […]
📅 Date: April 29 at 6:30–8:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/VGUonhd5RryG7cXUY82HEg This Months Topic:This session focuses on the ongoing journey of living with hydrocephalus or NPH. From diagnosis to treatment and beyond. Share experiences, ask questions, and discuss strategies for managing long-term health and quality of life.