Our organization has benefitted from 50 years of leaders. Individuals who stepped up to guide us. Firstly, as parents supporting parents, and then helping us grow in response the ever changing needs of people living with spina bifida and/or hydrocephalus, their families and caregivers. As we CELEBRATE the last 50 years, we thank each and every one of them, and all of the other people who joined our Board of Directors, for their selfless dedication.1971-72 Michael Bailey
1972-73 Gordon Baker
1973-74 Shirley Kimmel
1974-75 Heather Carron
1975-76 Harvey Baumgarten
1976-77 Janet Baker
1977-78 Rodney Walsh
1978-79 Bonnie Charbonneau
1979-80 Sharon Haney
1980-81 Lenore Cronin
1981-83 Maureen Gibson
1983-84 Aileen Lukow
1984-86 David Balsillie
1986-87 Neil McGavock
1987-89 Art Plug
1989-91 Elle Warner
1991-93 Paul Scale
1993-95 Derryn Gill
1995-97 Catherine Leitch
1996-99 Edna Arcand
1999-2001 Sharon Colle
2001 Catherine McKay
2001-2007 Derryn Gill
2007-2013 Marc Garson
2013-2020 Claudio Cinapri
2020-Present Gillian Akai