2026 Hydrocephalus Canada – Research Grant Program Opens April 1,2026


Research Priorities

We support research focused on:

  • Better shunts
  • Better alternatives to shunts
  • Better/faster diagnosis of normal pressure hydrocephalus
  • Better hydrocephalus management – better testing of shunt function/malfunction
  • Causes of congenital hydrocephalus
  • Long term effects of hydrocephalus on social skills in adults
  • The management of bladder and bowel incontinence
  • The social isolation of young persons with spina bifida
  • Better infection management
  • The genetics of mothers with spina bifida
  • Aging with spina bifida and hydrocephalus

Grant Details

  • 2026 Deadline for Submission: May 15, 2026

  • Funding Amount: Up to $25,000 per project

  • Eligibility: Principal/co-investigators must be Canadian citizens or affiliated with a Canadian institution. Physicians must be based in or affiliated with a Toronto hospital or university.

  • Use of Funds: Supports personnel, materials, data collection, and analysis. Equipment-only requests are not eligible


 

📩 Submit applications or questions to:
[email protected] | 🌐 www.hydrocephalus.ca
📅 2026 Application Deadline: May 15, 2026

2025 Research Grants Recipients 

Hydrocephalus Canada is proud to announce the 2025 Hydrocephalus Canada Research Award recipients, recognizing two outstanding Canadian researchers whose work will improve care, outcomes, and quality of life for people living with hydrocephalus, including normal pressure hydrocephalus (NPH), and for youth living with spina bifida and hydrocephalus.

This year, Hydrocephalus Canada is awarding two research grants of $20,000 each, supporting innovative projects focused on rehabilitation after hydrocephalus surgery and reducing isolation through digital connection for youth living with spina bifida and/or hydrocephalus.

These awards are made possible through the support of our charitable gaming partners, including Delta Bingo and Charitable Gaming. Community Good.

Why Hydrocephalus Research Matters

Hydrocephalus affects people of all ages—from infants and children to adults and older adults—and it can have lifelong impacts on mobility, cognition, independence, and mental health.

By funding research that improves clinical outcomes, rehabilitation pathways, and social support systems, Hydrocephalus Canada is working to ensure that individuals and families have access to better care and better quality of life.

The 2025 Hydrocephalus Canada Research Awards support critical areas of need, including:

  • Better recovery and function after shunt surgery

  • Improved mobility and balance outcomes

  • Reduced isolation and stronger peer connection for youth

  • More inclusive community support through technology


Dr. Alfonso Fasano

 

 

Professor, Department of Medicine (Division of Neurology)

Toronto Western Hospital (UHN)

Research Grant: $20,000

Research Title

Optimizing Function for Individuals with Normal Pressure Hydrocephalus, through individualized and time-sensitive rehabilitation

Research Project Summary

Idiopathic normal pressure hydrocephalus (NPH) is a neurological condition where excess cerebrospinal fluid (CSF) builds up in the brain. This can lead to increased pressure and symptoms such as walking difficulties (gait issues), confusion/cognitive changes, and incontinence.

Many people with NPH benefit from surgery to redirect the fluid elsewhere in the body, often through a shunt procedure. This can reduce symptoms and improve function. However, emerging evidence suggests that individuals may experience even stronger recovery when rehabilitation is introduced at the right time after surgery.

Dr. Fasano’s research will explore the impact of an exercise-oriented rehabilitation program delivered 3 to 4 months after shunt surgery—a time when the shunt is typically working at its best and when patients may be positioned to gain the greatest improvements in mobility, balance, walking confidence, and overall independence.

This study will help determine how time-sensitive rehabilitation could become an important part of best practices for NPH recovery and long-term functional outcomes.


Dr. Amy McPherson

 

Senior Scientist and Associate Professor
Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, University of Toronto
Research Grant: $20,000

Research Title

How do youth with spina bifida and hydrocephalus use digital environments to make meaningful connections and reduce isolation?

Research Project Summary

Youth living with spina bifida and/or hydrocephalus (SBH) can face barriers that affect in-person social inclusion, including physical accessibility challenges, fatigue, cognitive impacts, and social stigma. This can contribute to social isolation, particularly during adolescence and young adulthood.

Dr. McPherson’s research will explore how young people use digital environments (DEs)—including social media platforms, online forums, gaming communities, and peer support groups—to build meaningful social connections, strengthen identity, and reduce isolation.

The project will include semi-structured interviews with:

  • 10–15 youth aged 14–24, and

  • 10–15 parents or caregivers

The study will focus on four key objectives:

  1. Understanding youth experiences using digital spaces for connection and support

  2. Exploring caregiver perspectives on helping youth navigate digital communities

  3. Identifying which digital features help reduce isolation most effectively

  4. Documenting risks, challenges, and barriers youth may encounter online

Findings from this study will help inform tools and guidance for:

  • Youth living with SBH

  • Parents and caregivers

  • Healthcare professionals and rehabilitation teams

  • Digital platform and community developers

Ultimately, this work will support the creation of safer, more inclusive, and more supportive online spaces—and contribute to evidence-based strategies that improve social well-being for youth living with SBH.


Hydrocephalus Canada supports research that will improve the quality of life for all individuals with hydrocephalus and/or spina bifida and their families. We work in partnership with hospitals, rehabilitation centres, universities and other research facilities by:

Comprehensive Research Experience for Medical Students (CREMS) Summer Research Program

The Comprehensive Research Experience for Medical Students (CREMS) Summer Research Program provides opportunities each year for medical students enrolled at the University of Toronto to participate in a full-time summer research project between their first and second year, or second and third year of medical school, under the supervision of a faculty mentor. 

The program runs for 10 -12 weeks and the student works on a research project on a full-time basis. Submitted projects are reviewed and scored by the CREMs adjudication committee and are offered to the supervisor/projects with the highest scores.

Attached please find the Impact reports on the research that has been undertaken to support the advancement of medicine for those impacted by spina bifida and hydrocephalus.

Study topics have included:

  • Aging in Persons with SBH
  • Youth Healthcare Transitions
  • Sexuality of Youth with Physical Disabilities
  • SB Assessment of Neurobehavioural Development International-SANDI
  • Bowel Management in SB
  • Neurosurgical Patient Perspectives on Evaluation of Residents in Competence by Design Education
  • Barriers to Access of Pregnancy Care for Women with SB
  • Trends among Canadian Youth with Physical Disabilities
  • Exploring the Complexities of Weight Management Care for Children with Spina Bifida : A Qualitative study with children and parents
  • Healthy and Productive Paid Work for Youth with Disabilities-HAPPY
  • What are the Mental Health and Wellness Needs of Young Adults with Spina Bifida?
  • The Meaning of Health and Wellness in Adolescents and Youth with Spina Bifida
  • Discrimination, ableism and racism hurt but inclusion can heal: Listening to the intersectional lived experiences of youth with disabilities and co-creating solutions
  • Genetics of spina bifida