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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20260527T183000
DTEND;TZID=America/Toronto:20260527T200000
DTSTAMP:20260526T130341
CREATED:20260428T152737Z
LAST-MODIFIED:20260428T152737Z
UID:10000317-1779906600-1779912000@www.hydrocephalus.ca
SUMMARY:💚 Hydrocephalus / NPH Adult Group – May Meeting
DESCRIPTION:🌿 Topic of the Month: Nutrition\, Mood & Inflammation Support 🌿\nWe’ll explore good mood foods\, inflammation-fighting nutrition\, and how small changes can support overall well-being. We’ll also include awareness around latex allergies in honour of Allergy Awareness Month. \nA welcoming space to connect\, learn\, and share experiences with others in the hydrocephalus and NPH community. \n📅 May 27\n🕡 6:30–8:00 PM EDT\n🔗 Register: https://us02web.zoom.us/meeting/register/vxogWN7JT0ec0CuXoK0JiQ \n#Hydrocephalus #NPH #SupportGroup #NutritionForWellness #AllergyAwarenessMonth #InflammationSupport #CommunityCare
URL:https://www.hydrocephalus.ca/event/%f0%9f%92%9a-hydrocephalus-nph-adult-group-may-meeting/
LOCATION:ONLINE via ZOOM
CATEGORIES:Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2026/04/Support-Groups-2025-1080-x-600-px-2.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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DTSTART;TZID=America/Toronto:20260602T190000
DTEND;TZID=America/Toronto:20260602T203000
DTSTAMP:20260526T130341
CREATED:20260520T192402Z
LAST-MODIFIED:20260520T192552Z
UID:10000324-1780426800-1780432200@www.hydrocephalus.ca
SUMMARY:Supports for Caregivers | Free Webinar June 4
DESCRIPTION:Supports for Caregivers | Free Webinar \nJoin us on June 2 at 7:00 PM EDT for an informative and supportive webinar focused on caregiving in the hydrocephalus and spina bifida community. \nMany people take on caregiving roles—whether supporting a child\, partner\, or loved one often without identifying as a “caregiver.” This session is designed to recognize that role\, highlight the importance of caregiver wellbeing\, and connect you with free supports available across Ontario and Canada. \nFeaturing Sarah Calvin\, Manager of Regional Engagement at the Ontario Caregiver Organization\, alongside lived experience from community caregivers Janitha Shanmugarajan (parent) and Teresa Steeves (spouse). \nYou’ll learn: \n\nKey themes in hydrocephalus and spina bifida caregiving\, including lived experience perspectives\nThe importance of caregiver wellness and self-care\nHow to access free caregiver supports in Ontario and across Canada\n\n👉 Register here:https://us06web.zoom.us/webinar/register/WN_7nr7UO2cQBiAhq2RkX2bYQ \nFor questions\, contact: info@hydrocephalus.ca
URL:https://www.hydrocephalus.ca/event/supports-for-caregivers-free-webinar-june-4/
LOCATION:ONLINE via ZOOM
CATEGORIES:Parents,Webinars
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2026/05/Bio-English-webinar-2.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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