Hydrocephalus Canada

Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
2025-04-22 08:00 - 2026-12-01 17:00 (America/Toronto) | ONLINE via ZOOM
Dear community members,
Researchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London, plus their caregivers/support people.
What’s involved?

Online survey (patient and/or caregiver)

Optional 30‑minute virtual interview (if selected)

Thank‑you gift: $25 Amazon e‑gift card per survey, plus another $25 if you do the interview

Interested? Click the secure survey link below or share it with someone who might qualify:
👉 Survey link: HERE
Questions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!

Skip the Gifts. Spread the Support
2025-10-21 08:00 - 2025-12-31 17:00
Date: Ongoing through the holiday seasonLocation: Anywhere across Canada – host your own party or workplace event

Turn Your Celebration into Impact
This holiday season, skip the gifts and spread the support! Invite your guests to donate to Hydrocephalus Canada instead of bringing hostess gifts, or have your company display QR codes at your event so everyone can give easily.
Every donation helps provide:

One-on-one support sessions for individuals, parents, and caregivers

Vital support groups for families, youth, and young adults

Healthcare professional resources to improve care across Canada

Newborn Parent Kits, Family Support Boxes, Kids & Youth Hospital Kits, and Young Adult Transition Kits

How to Get Started
Hosting a fundraiser is simple:

Contact us at info@hydrocephalus.ca or fill out this quick form. We’ll help you set everything up.

Ask your guests to donate instead of gifts.

Share QR codes at your event for easy giving.

Celebrate with purpose and make a lasting impact!

Why Your Support Matters
By hosting your holiday party fundraiser, you’re helping families, youth, and young adults living with hydrocephalus and spina bifida across Canada:

Providing personalized support and guidance

Connecting families through peer groups and programs

Equipping healthcare professionals with resources

Delivering care kits and essential support items

Casting Call Across Canada
2025-10-21 08:00 - 2026-01-15 17:00
🎬 Casting Call: Kids’ Inclusive Sports & Arts Video Series!
We’re teaming up with TAP Toronto & Hydrocephalus Canada to create fun videos for schools & YouTube featuring accessible sports & arts programs for kids across Canada! 🏀🎨
A huge thank you to @TorontoFoundation for their generous grant making this possible! 🙏
We’d love to feature you, your kids, or your organization! Videos include friendly puppets, real coaches, and athletes (with parental consent).
✨ Join us & inspire more families to get involved!📧 Sign up or learn more: info@tap-toronto.com
#InclusiveSports #AccessibleArts #KidsActivities #HydrocephalusAwareness #TAPToronto #YouthPrograms #CanadaKids #AllAbilities

Accessible Yoga – December Session
2025-12-03 19:00 - 20:00 | ONLINE via ZOOM
🧘‍♀️ Accessible Yoga – December SessionDecember 3 • 7–8 PMFree session • Relaxation & ReviewRegister: https://us02web.zoom.us/meeting/register/QceFZJE1SLmW-MUZ_uretw
Join us for our only yoga session in December—a calming hour designed for accessibility, relaxation, and gentle movement. This class will focus on reconnecting with the body, easing tension, and reviewing supportive poses that anyone can try.
Perfect for all levels and all bodies.Come breathe, stretch, and unwind with us before the holiday season begins. ✨

👨‍👩‍👧 Hydrocephalus & Spina Bifida Parent Group – December Session
2025-12-09 20:00 - 21:00 | ONLINE via ZOOM
👨‍👩‍👧 Hydrocephalus & Spina Bifida Parent Group – December SessionDecember 9 • 8–9 PMRegister: https://us02web.zoom.us/meeting/register/uwxM8NXfSFmHVjkT1rxAyg
Topic: The ABC’s of Learning Disabilities – From Childhood and Beyond
Join us for an empowering conversation designed specifically for parents and caregivers. This month, we’ll explore:
🔤 What learning disabilities look like across different ages🧠 How they show up in school, daily routines, and social settings💡 Strategies to support your child or young adult at home and in the community📚 Helpful tools, accommodations, and long-term considerations
This is a relaxed, supportive space where you can learn, ask questions, and connect with parents who understand the journey of raising a child with hydrocephalus or spina bifida.
We hope you can join us! 💙

🎉 Toronto Taster’s Club – December Social Night
2025-12-10 18:00 - 20:00 | Old Spaghetti Factory, 54 The Esplanade, Toronto, Ontario, M5E 1A6, Canada
For Adults with Spina Bifida and/or Hydrocephalus
Join us for our final social outing of 2025! Come enjoy a warm meal, great conversation, and a relaxed evening with the Toronto Taster’s Club community.
📅 Wednesday, December 10, 2025📍 Old Spaghetti Factory – 54 The Esplanade🕕 6:00–8:00 PM
Whether you’re a regular attendee or joining for the first time, everyone is welcome!
👉 Please RSVP to Nicole Neeson📱 647-807-4348 (Call or Text)
Come connect, share, and enjoy a delicious dinner as we wrap up the year together. We hope to see you there! 🍝✨

🧠 Adult Spina Bifida Support Group – December Session
2025-12-11 18:30 - 20:00 | ONLINE via ZOOM
🧠 Adult Spina Bifida Support Group – December SessionDecember 11 • 6:30–8:00 PMRegister: https://us02web.zoom.us/meeting/register/AdDn9374S6SfU27V1_fMYA
Topic: Spina Bifida and Cognitive Challenges
Join us for an open and understanding conversation about how Spina Bifida can impact thinking, learning, memory, and daily problem-solving. We’ll talk about:
💭 Common cognitive challenges adults may experience🗂️ Strategies that help with organization, planning, and focus🤝 How to navigate work, relationships, and independence with confidence✨ Sharing lived experiences and tips from the community
This group is a welcoming space to connect, learn, and support one another. Whether you’re looking for practical tools or simply a place to feel understood, you’re welcome here

🧠 Adult Hydrocephalus Support Group – December Session
2025-12-17 18:30 - 20:00 | ONLINE via ZOOM
🧠 Adult Hydrocephalus Support Group – December SessionDecember 17 • 6:30–8:00 PMRegister: https://us02web.zoom.us/meeting/register/LVwDuHWCS-ia08x6kZiCJQ
Topic: Learning & Cognitive Challenges with Hydrocephalus/NPH
Join us for a supportive conversation focused on how hydrocephalus and NPH can affect thinking, memory, processing, and daily functioning. We’ll explore:
💡 Common cognitive changes adults may experience🧠 How learning and memory can shift over time🗺️ Practical strategies for organization, focus, and problem-solving🤝 Shared experiences from others living with hydrocephalus/NPH
This is a great session for caregivers to join as well, especially those wanting to better understand cognitive changes and how to offer meaningful support.
This group offers a welcoming space to talk openly, gain insight, and connect with others who truly understand the journey.

🍽️ Ottawa Social Group for Adults with Spina Bifida and/or Hydrocephalus
2025-12-18 12:00 - 14:00 | East Side Mario’s, 1820 Ogilvie Road, Gloucester, Ontario, K1J 7P4, Canada
December 2025 GatheringHosted in partnership with Hydrocephalus Canada
Join us for a warm and welcoming lunchtime meet-up in Ottawa as our community comes together to connect, share, and enjoy good company.
📅 Thursday, December 18, 2025📍 East Side Mario’s – 1820 Ogilvie Road, Ottawa🕛 Lunch at 12:00 PM
Everyone is welcome—whether you’re a regular participant or attending for the first time.
👉 Please RSVP to Mary Dufton📱 613-698-8173📧 maryjdufton@gmail.com
We look forward to spending a wonderful afternoon with you! 💛

✨ SHYNE December Session: Holidays & End-of-Year Celebrations! ✨
2025-12-18 19:00 - 20:00 | ONLINE via ZOOM
✨ SHYNE December Session: Holidays & End-of-Year Celebrations! ✨December 18 • 7–8 PMFor youth and young adults ages 16–29 with spina bifida or hydrocephalus
We are excited to share that next month’s SHYNE session will explore holidays and end-of-year traditions. This time of year looks different for everyone, and our conversation will make space for:
🎄 Cultural traditions and holidays 🎁 Expectations around gifts and giving🧘 Taking breaks and caring for ourselves during a busy season👨‍👩‍👧 Spending time with family and what that means for each of us
We’ve also put together a set of festive colouring pages you can print or download to your tablet—perfect for relaxing during our chat or enjoying afterward.👉 Download them here: https://drive.google.com/drive/folders/1THjWc0mL-is6I6NeBcMU4IC_Mu5LzqYw?usp=sharing
Join us for a cozy, low-pressure evening of connection and conversation.👉 Register here: https://us02web.zoom.us/meeting/register/veTZLBRoQSaoWlum0Ccb-w
We can’t wait to see you there! ❄️✨
