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X-WR-CALDESC:Events for Hydrocephalus Canada
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DTSTART;TZID=America/Toronto:20250422T080000
DTEND;TZID=America/Toronto:20261201T170000
DTSTAMP:20260423T062314
CREATED:20250422T153545Z
LAST-MODIFIED:20250422T153545Z
UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251021T080000
DTEND;TZID=America/Toronto:20251231T170000
DTSTAMP:20260423T062314
CREATED:20251021T163331Z
LAST-MODIFIED:20251021T171050Z
UID:10000272-1761033600-1767200400@www.hydrocephalus.ca
SUMMARY:Skip the Gifts. Spread the Support
DESCRIPTION:Date: Ongoing through the holiday seasonLocation: Anywhere across Canada – host your own party or workplace event \n\nTurn Your Celebration into Impact\nThis holiday season\, skip the gifts and spread the support! Invite your guests to donate to Hydrocephalus Canada instead of bringing hostess gifts\, or have your company display QR codes at your event so everyone can give easily. \nEvery donation helps provide: \n\n\nOne-on-one support sessions for individuals\, parents\, and caregivers \n\n\nVital support groups for families\, youth\, and young adults \n\n\nHealthcare professional resources to improve care across Canada \n\n\nNewborn Parent Kits\, Family Support Boxes\, Kids & Youth Hospital Kits\, and Young Adult Transition Kits \n\n\n\nHow to Get Started\nHosting a fundraiser is simple: \n\n\nContact us at info@hydrocephalus.ca or fill out this quick form. We’ll help you set everything up. \n\n\nAsk your guests to donate instead of gifts. \n\n\nShare QR codes at your event for easy giving. \n\n\nCelebrate with purpose and make a lasting impact! \n\n\n\nWhy Your Support Matters\nBy hosting your holiday party fundraiser\, you’re helping families\, youth\, and young adults living with hydrocephalus and spina bifida across Canada: \n\n\nProviding personalized support and guidance \n\n\nConnecting families through peer groups and programs \n\n\nEquipping healthcare professionals with resources \n\n\nDelivering care kits and essential support items
URL:https://www.hydrocephalus.ca/event/skip-the-gifts-spread-the-support/
CATEGORIES:Fundraising,Social Events
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2023/07/Become-the-host-with-the-most-2024-Spina-Bifida-Hydrocephalus-Today-Instagram-Post.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251021T080000
DTEND;TZID=America/Toronto:20260115T170000
DTSTAMP:20260423T062314
CREATED:20251021T131949Z
LAST-MODIFIED:20251021T132427Z
UID:10000269-1761033600-1768496400@www.hydrocephalus.ca
SUMMARY:Casting Call Across Canada
DESCRIPTION:🎬 Casting Call: Kids’ Inclusive Sports & Arts Video Series! \nWe’re teaming up with TAP Toronto & Hydrocephalus Canada to create fun videos for schools & YouTube featuring accessible sports & arts programs for kids across Canada! 🏀🎨 \nA huge thank you to @TorontoFoundation for their generous grant making this possible! 🙏 \nWe’d love to feature you\, your kids\, or your organization! Videos include friendly puppets\, real coaches\, and athletes (with parental consent). \n✨ Join us & inspire more families to get involved!📧 Sign up or learn more: info@tap-toronto.com \n#InclusiveSports #AccessibleArts #KidsActivities #HydrocephalusAwareness #TAPToronto #YouthPrograms #CanadaKids #AllAbilities
URL:https://www.hydrocephalus.ca/event/casting-call-across-canada/
CATEGORIES:Health and Wellness,Research,Social Events
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/10/Staying-Connected-Banners-Instagram-Post-45.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251104T120000
DTEND;TZID=America/Toronto:20251104T133000
DTSTAMP:20260423T062314
CREATED:20251021T133103Z
LAST-MODIFIED:20251022T124733Z
UID:10000270-1762257600-1762263000@www.hydrocephalus.ca
SUMMARY:Webinar: Hydrocephalus & Spina Bifida – A Neuropsychological Perspective
DESCRIPTION:🌟 Webinar Alert: Hydrocephalus & Spina Bifida – A Neuropsychological Perspective 🌟 \nJoin Dr. Stephanie L. Leon\, clinical psychologist & neuropsychologist (McGill University & University of Ottawa)\, as she explores the neuropsychological aspects of hydrocephalus and spina bifida across all age groups. \nDr. Leon\, formerly at Children’s Hospital of Eastern Ontario (CHEO)\, now in private practice\, specializes in supporting individuals with complex medical and neurodevelopmental challenges. \n📍 Registration: Zoom Link \n📅 What You’ll Learn:✅ Strengthen understanding of hydrocephalus and spina bifida✅ Promote comprehensive\, integrated\, and compassionate care for patients\, families\, and healthcare professionals \nIn partnership with:Association de spina-bifida et d’hydrocéphalie du Québec \nDon’t miss this opportunity to enhance your knowledge and support your community! 💙 \n📍 Registration: Zoom Link \n#Hydrocephalus #SpinaBifida #Neuropsychology #HealthcareEducation #FamilySupport #IntegratedCare #QuebecWebinar
URL:https://www.hydrocephalus.ca/event/10764/
LOCATION:ONLINE via ZOOM
CATEGORIES:Health and Wellness,Research,Webinars
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/10/Zoom-plug-in-cover-on-Eventbrite.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251105T190000
DTEND;TZID=America/Toronto:20251105T200000
DTSTAMP:20260423T062314
CREATED:20251105T162642Z
LAST-MODIFIED:20251105T171758Z
UID:10000277-1762369200-1762372800@www.hydrocephalus.ca
SUMMARY:
DESCRIPTION:🧘‍♀️💙 Accessible Yoga with Ingrid  💙🧘‍♂️ \nTake some time to stretch\, breathe\, and relax with a gentle\, inclusive yoga session designed for all ages and abilities. Join Ingrid for a calming evening that’s all about movement\, mindfulness\, and community. \n🗓 When: Wednesday\, November 5⏰ Time: 7:00 PM ET💻 Where: Zoom🔗 Register here: https://us02web.zoom.us/meeting/register/ekWSnMtbT2WH2I-U45NTRw \nNo experience needed—just bring yourself and a chair! 💙 \n#AccessibleYoga #ChairYoga #InclusiveWellness #HydrocephalusSupport #SpinaBifidaSupport #CommunityWellness #MindBodyConnection
URL:https://www.hydrocephalus.ca/event/10893/
LOCATION:ONLINE via ZOOM
CATEGORIES:Health and Wellness,Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/11/Support-Groups-2025-1080-x-600-px-9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251111T200000
DTEND;TZID=America/Toronto:20251111T210000
DTSTAMP:20260423T062314
CREATED:20251103T144635Z
LAST-MODIFIED:20251105T161634Z
UID:10000273-1762891200-1762894800@www.hydrocephalus.ca
SUMMARY:💙 Hydrocephalus & Spina Bifida Parent Support Group 💙
DESCRIPTION:💙 Hydrocephalus & Spina Bifida Parent Support Group 💙\nCaregiver Support Night: Sharing Tips & Stories\n🗓️ Tuesday\, November 11\n⏰ 8:00–9:00 PM (EST)\n📍 Online via Zoom \nBeing a parent or caregiver for a child with spina bifida or hydrocephalus comes with both challenges and incredible moments of love and learning. Join us for a warm\, supportive evening to share experiences\, exchange caregiver tips\, and connect with others who understand. 💬✨ \n🔗 Register here:\nhttps://us02web.zoom.us/meeting/register/07s96JEmTRK_yXwCWCEwJg \n#Hydrocephalus #SpinaBifida #ParentSupport #CaregiverCommunity #SupportGroup #DisabilityAwareness #ParentingJourney #SpinaBifidaAwareness #HydrocephalusAwareness
URL:https://www.hydrocephalus.ca/event/10873/
LOCATION:ONLINE via ZOOM
CATEGORIES:Health and Wellness,Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/11/Support-Groups-2025-1080-x-600-px-1.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251113T190000
DTEND;TZID=America/Toronto:20251113T200000
DTSTAMP:20260423T062314
CREATED:20251103T150517Z
LAST-MODIFIED:20251103T151908Z
UID:10000276-1763060400-1763064000@www.hydrocephalus.ca
SUMMARY:💬 This month’s SHYNE meeting theme: Accessible Technology! 💻✨
DESCRIPTION:🌟 SHYNE (Supporting Hydrocephalus Youth Network & Empowerment)\n🗓️ Thursday\, November 13\n⏰ 7:00–8:00 PM (EST)\n📍 Online via Zoom \n💬 This month’s SHYNE meeting theme: Accessible Technology! 💻✨\nLet’s talk about the tech and tools that help make our daily lives more accessible — whether for school\, work\, or everyday routines. From adaptive devices to helpful apps\, come share what works for you and learn from others in the community! 🙌 \n🔗 Register here:\nhttps://us02web.zoom.us/meeting/register/kUQXApxgTgu82IL7UmcbkA \n#SHYNE #AccessibleTechnology #HydrocephalusYouth #Inclusion #DisabilityEmpowerment #AccessibilityMatters #YouthSupport #CommunityConnection
URL:https://www.hydrocephalus.ca/event/%f0%9f%92%ac-this-months-shyne-meeting-theme-accessible-technology-%f0%9f%92%bb%e2%9c%a8/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research,Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/11/SHYNE-NOV-13th-PROMO-POSTER.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251120T120000
DTEND;TZID=America/Toronto:20251120T140000
DTSTAMP:20260423T062314
CREATED:20251021T134530Z
LAST-MODIFIED:20251021T134530Z
UID:10000271-1763640000-1763647200@www.hydrocephalus.ca
SUMMARY:Ottawa's Taster's Club
DESCRIPTION:🍕 Ottawa Taster’s Club 🍕 \nJoin us for a casual lunch with hydrocephalus and spina bifida friends  at Colonnade Pizza  \n📅 Date: Thursday\, November 20\, 2025🕛 Time: 12:00 PM📍 Location: 1500 Bank Street (Blue Heron Mall) \nPlease RSVP to Mary Dufton:📞 613-698-8173📧 maryjdufton@gmail.com \nCome enjoy good food and great company! 💛
URL:https://www.hydrocephalus.ca/event/ottawas-tasters-club/
LOCATION:Colonnade Pizza\, 1500 Bank Street\, Ottawa\, Ontario\, K1H 7Z2\, Canada
CATEGORIES:Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/10/Screenshot-2025-10-21-093852.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251120T183000
DTEND;TZID=America/Toronto:20251120T200000
DTSTAMP:20260423T062314
CREATED:20251103T144918Z
LAST-MODIFIED:20251103T145618Z
UID:10000274-1763663400-1763668800@www.hydrocephalus.ca
SUMMARY:Spina Bifida Adult Support Group
DESCRIPTION:💬 Spina Bifida Adult Support Group\n🗓️ Thursday\, November 20\n⏰ 6:30–8:00 PM (EST)\n📍 Online via Zoom \nNovember is Bowel and Bladder Month — and we’re opening up an honest\, supportive discussion about bowel and bladder health for adults living with spina bifida. From urge incontinence to neurogenic bladder\, nothing is off-limits in this safe space to learn\, share\, and connect. 💙 \n🔗 Register here:\nhttps://us02web.zoom.us/meeting/register/HhQe0UbGTxyuSJWWCja6iw \n#SpinaBifida #SpinaBifidaAdults #BowelAndBladderMonth #DisabilitySupport #AdultSupportGroup #SpinaBifidaAwareness #CommunityConnection #HealthAndWellness
URL:https://www.hydrocephalus.ca/event/spina-bifida-adult-support-group/
LOCATION:ONLINE via ZOOM
CATEGORIES:Health and Wellness,Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/11/Support-Groups-2025-1080-x-600-px-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251126T183000
DTEND;TZID=America/Toronto:20251126T200000
DTSTAMP:20260423T062314
CREATED:20251103T145836Z
LAST-MODIFIED:20251103T145956Z
UID:10000275-1764181800-1764187200@www.hydrocephalus.ca
SUMMARY:Adult Hydrocephalus & NPH Support Group
DESCRIPTION:💧 Adult Hydrocephalus & NPH Support Group\n🗓️ Wednesday\, November 26\n⏰ 6:30–8:00 PM (EST)\n📍 Online via Zoom \nEven after successful shunting\, many individuals with hydrocephalus and NPH experience bowel and bladder challenges. Join us this November as we share practical tips and relaxation exercises to help improve bowel and bladder health. 🌿 \nCome connect\, learn\, and support each other in a safe\, understanding space. 💙 \n🔗 Register here:\nhttps://us02web.zoom.us/meeting/register/7K2mVvhSRqeKGgYlMReIhA \n#Hydrocephalus #NPH #AdultSupportGroup #BowelAndBladderHealth #HydrocephalusAwareness #DisabilitySupport #CommunityCare #WellnessJourney
URL:https://www.hydrocephalus.ca/event/adult-hydrocephalus-nph-support-group/
LOCATION:ONLINE via ZOOM
CATEGORIES:Health and Wellness,Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/11/Support-Groups-2025-1080-x-600-px-3.jpg
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