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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20260423T183000
DTEND;TZID=America/Toronto:20260423T200000
DTSTAMP:20260420T113700
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UID:10000313-1776969000-1776974400@www.hydrocephalus.ca
SUMMARY:Adult Spina Bifida Support Group
DESCRIPTION:📅 Date: April 23 at 6:30–8:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/KNZhRoljROaBTwlXIyV0BA \nThis months topic:A conversation for adults living with spina bifida about how health needs evolve over time. Topics include managing transitions in care\, advocating within the healthcare system\, and navigating independence and long-term wellness. \nWe are always open to your opinions on support groups topics. Have any ideas you would like to share email info@hydrocephalus.ca with the subject line SB Support Group
URL:https://www.hydrocephalus.ca/event/adult-spina-bifida-support-group-4/
LOCATION:ONLINE via ZOOM
CATEGORIES:Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2026/03/Support-Groups-2025-1080-x-600-px-17.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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DTSTART;TZID=America/Toronto:20260429T183000
DTEND;TZID=America/Toronto:20260429T200000
DTSTAMP:20260420T113700
CREATED:20260324T162633Z
LAST-MODIFIED:20260324T162900Z
UID:10000314-1777487400-1777492800@www.hydrocephalus.ca
SUMMARY:🧠 Hydrocephalus / NPH Adult Support Group
DESCRIPTION:📅 Date: April 29 at 6:30–8:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/VGUonhd5RryG7cXUY82HEg \nThis Months Topic:This session focuses on the ongoing journey of living with hydrocephalus or NPH. From diagnosis to treatment and beyond. Share experiences\, ask questions\, and discuss strategies for managing long-term health and quality of life.
URL:https://www.hydrocephalus.ca/event/%f0%9f%a7%a0-hydrocephalus-nph-adult-support-group/
LOCATION:ONLINE via ZOOM
CATEGORIES:Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2026/03/Support-Groups-2025-1080-x-600-px-16.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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