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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20260414T200000
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UID:10000311-1776196800-1776200400@www.hydrocephalus.ca
SUMMARY:Hydrocephalus and Spina Bifida Parent Support Group
DESCRIPTION:📅 Date: April 14 at 8:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/qKWPpQh8QaWLaLo0VF0Opg \nEvent Description:This parent-focused session explores the evolving journey from diagnosis through treatment and beyond. Connect with other caregivers\, share experiences\, and discuss how to navigate changing medical needs\, advocate for your child\, and plan for the future.
URL:https://www.hydrocephalus.ca/event/hydrocephalus-and-spina-bifida-parent-support-group/
LOCATION:ONLINE via ZOOM
CATEGORIES:Parents,Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2026/03/Support-Groups-2025-1080-x-600-px-12.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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