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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20260409T190000
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DTSTAMP:20260409T012626
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UID:10000310-1775761200-1775764800@www.hydrocephalus.ca
SUMMARY:✨ SHYNE (Youth & Young Adults)
DESCRIPTION:📅 Date: April 9 at 7:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/OZlXYE3iRWK3qPnzEnZifw \nEvent Description:A supportive space for youth and young adults to connect and share their experiences navigating diagnosis\, treatment\, and growing independence. This session focuses on identity\, confidence\, and building community with others who understand the journey.
URL:https://www.hydrocephalus.ca/event/%e2%9c%a8-shyne-youth-young-adults/
LOCATION:ONLINE via ZOOM
CATEGORIES:Social Events,Support Groups
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2026/03/SHYNE-APR-9TH-PROMO-POSTER-1.pdf
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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