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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20260326T183000
DTEND;TZID=America/Toronto:20260326T200000
DTSTAMP:20260515T063058
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UID:10000303-1774549800-1774555200@www.hydrocephalus.ca
SUMMARY:National Adult Spina Bifida Support Group March
DESCRIPTION:♿ Adult Spina Bifida Support Group \nTheme: Mobility issues and challenges as you age\, plus strategies and solutions \nAs adults with Spina Bifida age\, mobility needs and daily challenges can change. This upcoming support group session creates space to discuss mobility concerns\, accessibility needs\, pain management\, fatigue\, independence\, and adaptive strategies that help improve quality of life over time. \nJoin others in the adult Spina Bifida community to share experiences\, learn practical solutions\, and connect with peers navigating similar life transitions. This session will focus on strategies and supports to help maintain mobility\, independence\, and overall well-being. \nDiscussion topics may include: \n✔ Managing changing mobility needs✔ Adaptive equipment and accessibility solutions✔ Strategies for maintaining independence✔ Coping with fatigue and physical changes✔ Community resources and peer support \n📅 March 26🕡 6:30–8:00 PM (ET)📍 Online via Zoom \n🔗 Register here:https://us02web.zoom.us/meeting/register/83_viteNQc64zmflXCrYAg \nKeywords: Adult Spina Bifida support\, aging with Spina Bifida\, mobility challenges\, accessibility solutions\, adaptive equipment\, disability support community\, independent living with Spina Bifida\, adult disability resources\, mobility strategies\, quality of life support. \n#SpinaBifida #AdultSpinaBifida #MobilitySupport #AccessibilityMatters #DisabilityCommunity #AdaptiveLiving #IndependentLiving #SupportGroup #DisabilitySupport #SpinaBifidaAwareness #CommunitySupport
URL:https://www.hydrocephalus.ca/event/national-adult-spina-bifida-support-group-march/
LOCATION:ONLINE via ZOOM
CATEGORIES:Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2026/02/Support-Groups-2025-1080-x-600-px-8.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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