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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20260319T200000
DTEND;TZID=America/Toronto:20260319T210000
DTSTAMP:20260515T062743
CREATED:20260212T165515Z
LAST-MODIFIED:20260212T170430Z
UID:10000306-1773950400-1773954000@www.hydrocephalus.ca
SUMMARY:SHYNE Group – March Session: Seasonal Organization & Spring Cleaning for youth and young adults ages 16–29 living with spina bifida or hydrocephalus
DESCRIPTION:🌸 SHYNE Group – March Session: Seasonal Organization & Spring Cleaning \n📅 Thursday\, March 19\, 2026 8pm-9pm EST \n📍 Online via Zoom \nJoin the SHYNE Group\, a supportive community program for youth and young adults ages 16–29 living with spina bifida or hydrocephalus\, for our March session focused on seasonal organization and spring cleaning strategies. \nSeasonal transitions can feel overwhelming\, especially when managing health needs\, accessibility considerations\, and busy schedules. This session will share practical tips for decluttering\, organizing living spaces\, and building manageable routines to create calmer\, more functional environments at home. \nParticipants will connect with peers\, share ideas\, and learn strategies to support independence\, accessible living\, and everyday organization skills\, helping make seasonal changes easier and less stressful. \n🔗 Register here:https://us02web.zoom.us/meeting/register/sk6XNw3VS8mrCkhBYA_uYg \n#SHYNEGroup #SpinaBifida #Hydrocephalus #YouthSupport #YoungAdultSupport #LifeSkills #AccessibleLiving #SpringCleaning #OrganizationTips #DisabilityCommunity #PeerSupport
URL:https://www.hydrocephalus.ca/event/shyne-group-march-session-seasonal-organization-spring-cleaning-for-youth-and-young-adults-ages-16-29-living-with-spina-bifida-or-hydrocephalus/
LOCATION:ONLINE via ZOOM
CATEGORIES:Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2026/02/SHYNE-FEB-19TH-PROMO-POSTER-2.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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