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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20260311T183000
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DTSTAMP:20260515T063101
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UID:10000298-1773253800-1773261000@www.hydrocephalus.ca
SUMMARY:Toronto Adults Taster's Club with the Hydrocephalus & Spina Bifida Community: March
DESCRIPTION:Looking to connect with other adults living with Hydrocephalus and/or Spina Bifida in Toronto?The Hydrocephalus Canada – Toronto Taster’s Club invites you to a relaxed\, friendly in-person dinner social where connection comes first. \nThis group is for adults who want a safe\, understanding space to socialize\, share experiences\, and enjoy a good meal together. No pressure\, just community. \n📅 Wednesday\, March 11\, 2026📍 Swiss Chalet – 1255 The Queensway\, Etobicoke⏰ Dinner: 6:30 – 8:30 PM \nWhether you’re newly diagnosed\, long-time lived experience\, or just looking to meet others who get it\, you are welcome. \n👉 Please RSVP so we can save enough space:Nicole Neeson📞📱 647-807-4348 (phone or text) \n💙 Not sure about coming? Many attendees feel nervous the first time — that’s completely okay. This is a judgment-free\, supportive group where you can come exactly as you are.
URL:https://www.hydrocephalus.ca/event/toronto-adults-tasters-club-with-the-hydrocephalus-spina-bifida-community/
LOCATION:Swiss Chalet\, 540 Montreal Road\, Ottawa\, Ontario\, K1H 8L1\, Canada
CATEGORIES:Social Events,Support Groups
ATTACH;FMTTYPE=image/png:https://www.hydrocephalus.ca/wp-content/uploads/2026/01/Screenshot-2026-02-10-115734.png
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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