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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20260225T183000
DTEND;TZID=America/Toronto:20260225T193000
DTSTAMP:20260515T074426
CREATED:20260126T165602Z
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UID:10000294-1772044200-1772047800@www.hydrocephalus.ca
SUMMARY:📣 This month’s Hydrocephalus & NPH Support Group topic: pain\, pressure management\, and real-life coping tips.
DESCRIPTION:Join Hydrocephalus Canada’s National Hydrocephalus & Normal Pressure Hydrocephalus (NPH) Support Group for an important discussion on pain management and pressure sore prevention (pressure injuries). \nPressure sores can develop quickly  especially for individuals with limited mobility\, fatigue\, balance challenges\, or long periods of sitting or bed rest. \nWe’ll cover:\n✅ early warning signs of pressure sores and skin breakdown✅ daily skin checks + positioning reminders✅ pressure relief tips for sitting and resting✅ pain awareness and when to seek medical care✅ support\, shared experiences\, and practical prevention strategies \n📅 Feb. 25\, 2026🕡 6:30 PM EST💻 Register here: https://us02web.zoom.us/meeting/register/2B_nY5qcRD-a2W0A9H0_Nw \n#Hydrocephalus #NPH #NormalPressureHydrocephalus #HydrocephalusCanada #HydrocephalusSupport #PressureSorePrevention #PressureInjuryAwareness #SkinChecks #PainManagement #CaregiverSupport #NationalSupportGroup
URL:https://www.hydrocephalus.ca/event/%f0%9f%93%a3-this-months-hydrocephalus-nph-support-group-topic-pain-pressure-management-and-real-life-coping-tips/
LOCATION:ONLINE via ZOOM
CATEGORIES:Health and Wellness,Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2026/01/Support-Groups-2025-1080-x-600-px-2.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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