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CREATED:20250422T153545Z
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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20260210T200000
DTEND;TZID=America/Toronto:20260210T210000
DTSTAMP:20260515T074410
CREATED:20260126T161259Z
LAST-MODIFIED:20260126T161412Z
UID:10000292-1770753600-1770757200@www.hydrocephalus.ca
SUMMARY:🚨 Spina Bifida & Hydrocephalus Parent/Caregiver Support Group (National)  February 10th
DESCRIPTION:🚨 Spina Bifida & Hydrocephalus Parent/Caregiver Support Group (National) — Feb. 10\, 2026 \nParents and caregivers: pressure sores (pressure injuries) can start quietly and become serious fast — especially for children\, youth\, and adults living with Spina Bifida and/or Hydrocephalus. \nJoin our National Spina Bifida and Hydrocephalus Parent & Caregiver Support Group for an important discussion on:\n✅ pressure sore prevention tips✅ daily skin checks and early warning signs✅ pain awareness (even with reduced sensation)✅ wheelchair seating\, cushions\, and positioning reminders✅ when to seek medical help for skin breakdown \nThis is a welcoming space for families across the country to connect\, learn\, and support one another. \n📅 Feb. 10\, 2026🕗 8:00 PM EST💻 Register here: https://us02web.zoom.us/meeting/register/jkH2pqjiTy2L7cAmPE1Jxw \n#SpinaBifida #Hydrocephalus #SpinaBifidaSupport #HydrocephalusSupport #CaregiverSupport #ParentSupportGroup #PressureSorePrevention #PressureInjuryAwareness #SkinChecks #SkinBreakdown #WheelchairLife #DisabilityParenting #AdaptiveEquipment #WoundCare #ChronicPainSupport
URL:https://www.hydrocephalus.ca/event/%f0%9f%9a%a8-spina-bifida-hydrocephalus-parent-caregiver-support-group-national-february-10th/
LOCATION:ONLINE via ZOOM
CATEGORIES:Parents,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2026/01/Support-Groups-2025-1080-x-600-px.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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