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CREATED:20250422T153545Z
LAST-MODIFIED:20250422T153545Z
UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20260128T183000
DTEND;TZID=America/Toronto:20260128T200000
DTSTAMP:20260515T095802
CREATED:20251217T184533Z
LAST-MODIFIED:20251217T184533Z
UID:10000286-1769625000-1769630400@www.hydrocephalus.ca
SUMMARY:💙 Hydrocephalus & Normal Pressure Hydrocephalus (NPH) Support Group – Virtual (Zoom)
DESCRIPTION:💙 Hydrocephalus & Normal Pressure Hydrocephalus (NPH) Support Group – Virtual (Zoom)🗓️ January 28🕡 6:30 PM EST \nJoin us as we explore how to navigate your health and get the tests you need. \nThis online Hydrocephalus and NPH support group is designed for patients\, caregivers\, and family members seeking clear information about diagnosis\, medical testing\, neurological exams\, imaging\, and long-term care management. We’ll discuss how to advocate for appropriate health tests\, understand common diagnostic procedures for hydrocephalus and Normal Pressure Hydrocephalus\, and navigate the healthcare system with confidence. \n📩 Questions? Email info@hydrocephalus.ca🎁 Free patient kits available\, including essential medical information\, educational materials\, and trusted support resources. \n✅ Register for this virtual support group:https://us02web.zoom.us/meeting/register/He2zYx5mRui21G3c5M2Ejw
URL:https://www.hydrocephalus.ca/event/%f0%9f%92%99-hydrocephalus-normal-pressure-hydrocephalus-nph-support-group-virtual-zoom/
LOCATION:ONLINE via ZOOM
CATEGORIES:Health and Wellness,Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/12/Support-Groups-2025-1080-x-600-px-1.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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