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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20251014T200000
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CREATED:20250924T172307Z
LAST-MODIFIED:20250924T172307Z
UID:10000259-1760472000-1760475600@www.hydrocephalus.ca
SUMMARY:Hydrocephalus & Spina Bifida Parent October Support Group
DESCRIPTION:🌟 Join Us for a Special Advocacy Discussion! 🌟 \nWhat is advocacy\, and why is it so important? From schools elementary\, secondary\, and university/college to housing\, employment\, accommodations\, and funding\, advocacy plays a vital role throughout our lives. Learn how to speak up for yourself\, your child\, or your community and explore your own advocacy style. \n👨‍👩‍👧‍👦 If you’re a parent or caregiver\, discover practical ways to advocate for your child and teach them the skills to advocate for themselves. \n🗓 When: Tuesday\, October 14⏰ Time: 8:00 PM ET💻 Where: Zoom🔗 Register here: https://us02web.zoom.us/meeting/register/pTloNkEXRbuUzTCeYrHKAA \nJoin our Hydrocephalus & Spina Bifida Parent Support Group for an informative and empowering session. Let’s share experiences\, strategies\, and support each other in the advocacy journey! 💙
URL:https://www.hydrocephalus.ca/event/hydrocephalus-spina-bifida-parent-october-support-group/
LOCATION:ONLINE via ZOOM
CATEGORIES:Social Events,Support Groups
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ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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