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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20250918T183000
DTEND;TZID=America/Toronto:20250918T203000
DTSTAMP:20260515T163423
CREATED:20250806T172029Z
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UID:10000253-1758220200-1758227400@www.hydrocephalus.ca
SUMMARY:Adult Spina Bifida Support Group
DESCRIPTION:Resilience as a Coping Mechanism. What does it mean to be or become resilient? From resilient grieving to resilient coping\, we discuss it all. And we learn techniques to keep you bouncing forward! Join adults from across Canada as we share experiences and tips\, discuss topics related to spina bifida and learn from each other. \nWhen: Sept. 18 6:30pm EST \nRegistration: https://us02web.zoom.us/meeting/register/VvIrgNS4RSeAcGwLmTHFVA#/registration
URL:https://www.hydrocephalus.ca/event/adult-spina-bifida-support-group-3/
LOCATION:ONLINE via ZOOM
CATEGORIES:Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/08/Support-Groups-2025-1.jpg
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