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CREATED:20250422T153545Z
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UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20250909T200000
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DTSTAMP:20260515T143137
CREATED:20250806T171534Z
LAST-MODIFIED:20250806T171534Z
UID:10000252-1757448000-1757451600@www.hydrocephalus.ca
SUMMARY:September Hydrocephalus & Spina Bifida Parent Group Support Group
DESCRIPTION:What does it mean to be  resilient? And how has the definition changed while raising a child with hydrocephalus and/or spina bifida? What enables you to be resilient and how can you teach your child/teen/adult to become resilient? \n\n\nSep 9\, 2025 8:00 PM\n\n\nJoin parents from across Canada as they share experiences and tips\, discuss topics related to hydrocephalus and spina bifida and learn from each other and their child’s journey. Parents of children of all ages including adults welcome!\n\n\nRegister Here:  https://us02web.zoom.us/meeting/register/05tKpflhR4K-PvcBdR86CA
URL:https://www.hydrocephalus.ca/event/september-hydrocephalus-spina-bifida-parent-group-support-group/
LOCATION:ONLINE via ZOOM
CATEGORIES:Social Events,Support Groups
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/08/Support-Groups-2025.jpg
ORGANIZER;CN="Hydrocephalus Canada":MAILTO:info@hydrocephalus.ca
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