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UID:10000239-1745308800-1750698000@www.hydrocephalus.ca
SUMMARY:Help Researchers Improve Access to Psycho‑Educational Assessments
DESCRIPTION:Help Researchers Improve Access to Psycho‑Educational Assessments\nAre you a parent or caregiver who …** \n\n\nSought a psycho‑educational assessment for a child/teen in the last 10 years \n\n\nWhose child attended an Ontario school at the timeIf yes\, University of Toronto researchers would love to hear about your experience! \n\n\nWhat’s Involved\n\n\n15‑20 minute online survey (Qualtrics) about the process and any barriers you faced \n\n\nVoluntary & anonymous—survey begins after you read a Letter of Information and give consent \n\n\n👉 Start the survey now: https://qualtricsxmyn4mkq66j.qualtrics.com/jfe/form/SV_6YiQvEVIVoE0LZQ \nQuestions?\n\n\nFlorencia Saposnik\, Student Principal Investigator – florencia.saposnik@mail.utoronto.ca \n\n\nDr. Linda Iwenofu\, Faculty Supervisor – linda.iwenofu@utoronto.ca \n\n\nThis study has ethics clearance from the University of Toronto Research Ethics Board. \nPlease share with anyone who might qualify—your insights can help make assessments more accessible for Ontario families!
URL:https://www.hydrocephalus.ca/event/help-researchers-improve-access-to-psycho%e2%80%91educational-assessments/
CATEGORIES:Research
ATTACH;FMTTYPE=image/png:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/Screenshot-2025-04-22-113437.png
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CREATED:20250422T153545Z
LAST-MODIFIED:20250422T153545Z
UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20250608T093000
DTEND;TZID=America/Toronto:20250608T140000
DTSTAMP:20260416T142023
CREATED:20240307T201232Z
LAST-MODIFIED:20250326T132721Z
UID:10000136-1749375000-1749391200@www.hydrocephalus.ca
SUMMARY:2nd Annual Celebrate Live Dream Walk\, Wheel or Run 2km/5km June 8th\, 2025
DESCRIPTION:Celebrate Live Dream Walk – June 8\, 2025 | Downsview Park\, Toronto\nFollowing last year’s incredible success\, Hydrocephalus Canada is thrilled to bring back the Celebrate Live Dream Walk—our 2km/5km walk\, wheel\, or run dedicated to raising awareness and support for the hydrocephalus and spina bifida communities across Canada! \nThis event is more than just a walk; it’s a powerful movement uniting individuals\, families\, and advocates in celebration of resilience\, hope\, and community. Because of YOU—our amazing participants and supporters—last year’s event made a lasting impact\, and we can’t wait to do it all over again! \nWe are also excited to continue our partnership with the Dystonia Medical Research Foundation (DMRF) Canada—a national neurological health charity that shares our vision of raising funds and awareness while supporting individuals impacted by these complex conditions. Together\, we are amplifying our impact\, creating a stronger voice\, and building a more inclusive future. \nAll proceeds from the walk help Hydrocephalus Canada continue providing essential programs\, services\, and resources for people at every stage of life—from children and families to adults and seniors. \nJoin us on June 8th at Downsview Park! Stay tuned for registration details and get ready to Celebrate\, Live\, and Dream with us once again. \nSee you at the finish line! 🚶‍♀️💙🎉
URL:https://www.hydrocephalus.ca/event/celebrate-live-dream-walk-wheel-or-run-2km-5km-june-8th-2025/
LOCATION:Downsview Park\, Toronto\, 70 Canuck Ave\, North York\, Ontario\, M3K 2C5\, Canada
CATEGORIES:Fundraising,Social Events
ATTACH;FMTTYPE=image/jpeg:https://www.hydrocephalus.ca/wp-content/uploads/2025/03/Walk-1.jpg
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