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X-WR-CALDESC:Events for Hydrocephalus Canada
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DTSTART;TZID=America/Toronto:20250422T080000
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DTSTAMP:20260416T125148
CREATED:20250422T153716Z
LAST-MODIFIED:20250422T153716Z
UID:10000239-1745308800-1750698000@www.hydrocephalus.ca
SUMMARY:Help Researchers Improve Access to Psycho‑Educational Assessments
DESCRIPTION:Help Researchers Improve Access to Psycho‑Educational Assessments\nAre you a parent or caregiver who …** \n\n\nSought a psycho‑educational assessment for a child/teen in the last 10 years \n\n\nWhose child attended an Ontario school at the timeIf yes\, University of Toronto researchers would love to hear about your experience! \n\n\nWhat’s Involved\n\n\n15‑20 minute online survey (Qualtrics) about the process and any barriers you faced \n\n\nVoluntary & anonymous—survey begins after you read a Letter of Information and give consent \n\n\n👉 Start the survey now: https://qualtricsxmyn4mkq66j.qualtrics.com/jfe/form/SV_6YiQvEVIVoE0LZQ \nQuestions?\n\n\nFlorencia Saposnik\, Student Principal Investigator – florencia.saposnik@mail.utoronto.ca \n\n\nDr. Linda Iwenofu\, Faculty Supervisor – linda.iwenofu@utoronto.ca \n\n\nThis study has ethics clearance from the University of Toronto Research Ethics Board. \nPlease share with anyone who might qualify—your insights can help make assessments more accessible for Ontario families!
URL:https://www.hydrocephalus.ca/event/help-researchers-improve-access-to-psycho%e2%80%91educational-assessments/
CATEGORIES:Research
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CREATED:20250422T153545Z
LAST-MODIFIED:20250422T153545Z
UID:10000238-1745308800-1796144400@www.hydrocephalus.ca
SUMMARY:Help Us Improve Adult Care for Spina Bifida & Cerebral Palsy
DESCRIPTION:Dear community members\, \nResearchers at Western University – Drs. Laura Brunton & Caitlin Cassidy – are studying how adults with childhood‑onset disabilities receive healthcare after they leave pediatric services. We’re looking for Ontario adults (18+) with cerebral palsy or spina bifida who are not patients of the Transitional & Lifelong Care (TLC) Clinic in London\, plus their caregivers/support people. \nWhat’s involved? \n\n\nOnline survey (patient and/or caregiver) \n\n\nOptional 30‑minute virtual interview (if selected) \n\n\nThank‑you gift: $25 Amazon e‑gift card per survey\, plus another $25 if you do the interview \n\n\nInterested? Click the secure survey link below or share it with someone who might qualify: \n👉 Survey link: HERE \nQuestions? Contact the study team at TLCstudy@uwo.caYour voice can help shape better adult‑care pathways across Ontario!
URL:https://www.hydrocephalus.ca/event/help-us-improve-adult-care-for-spina-bifida-cerebral-palsy/
LOCATION:ONLINE via ZOOM
CATEGORIES:Research
ATTACH;FMTTYPE=application/pdf:https://www.hydrocephalus.ca/wp-content/uploads/2025/04/TLC-Study-Advertisement.pdf
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DTSTART;TZID=America/Toronto:20250427T080000
DTEND;TZID=America/Toronto:20250427T170000
DTSTAMP:20260416T125148
CREATED:20250411T131038Z
LAST-MODIFIED:20250411T131102Z
UID:10000230-1745740800-1745773200@www.hydrocephalus.ca
SUMMARY:🧠 Join the Movement to Prioritize Brain Health in Canada
DESCRIPTION:Over 10 million Canadians are living with neurological conditions\, impacting every aspect of their lives and costing the Canadian economy an estimated $61 billion annually—more than cancer and cardiovascular disease combined. \nThe last comprehensive study\, Mapping Connections\, was conducted over a decade ago. With Canada’s aging and diversifying population\, and in the wake of the pandemic\, it’s imperative to update our understanding of neurological health. \nBrain Health Matters\, an initiative by Neurological Health Charities Canada\, is calling on the federal government to invest in a renewed National Population-level Neurological Health Survey. This updated survey will inform and improve the prevention\, diagnosis\, and treatment of neurological and mental health conditions\, leading to better outcomes for patients and caregivers. ​ \nTake Action Today: \n\n\nVisit: brainhealthmatters.ca \n\n\nSend a Letter: Use our easy tool to email your local candidates\, urging them to support this crucial investment.​brainhealthmatters.ca \n\n\nYour voice can make a difference. Together\, we can ensure that brain health is a national priority.​
URL:https://www.hydrocephalus.ca/event/%f0%9f%a7%a0-join-the-movement-to-prioritize-brain-health-in-canada/
CATEGORIES:Social Events,Support Groups
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