Awareness Month 2022

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June is Hydrocephalus & Spina Bifida Awareness Month

Join us in supporting Hydrocephalus and Spina Bifida in Canada

June is Hydrocephalus and Spina Bifida (H&SB) Awareness month in Canada. It is estimated that 120,000 Canadians are living with hydrocephalus. 85% of those impacted by  hydrocephalus also have spina bifida. Hydrocephalus Canada (HC) bridges research, awareness  and innovation with advocacy, education and support to empower people impacted by hydrocephalus and spina bifida to experience their best life. To highlight the conditions and  celebrate those living with the conditions, HC and other Spina Bifida and Hydrocephalus organizations across Canada encourage our communities to raise awareness through various activities and fundraising campaigns. 

We encourage you to champion our June activities, spread awareness in your communities and share your engagement online. Check out what we have already been upto and continue to celebrate with us.

Host a Spirit Wheel Walk Run

Get creative this June and register your very own Spirit Wheel Walk Run (SWWR) Awareness and  Fundraising event! A SWWR can be any type of activity, such as an online Facebook fundraiser, lemonade stand or in-person walk/wheel/run in your favourite park or local neighbourhood. The fun  part is you get to be creative with your event and invite your family and friends to join you in raising  awareness and funds for the H&SB community! 

Check out Troy’s Trail this month and see how they have been raising awareness in Sault  Ste. Marie as they celebrate 11 years of making a difference in their community. 

Steps for June
This year Canada, we are challenging you to join us in all the fun! Jumpstart June with our Steps Challenge in support of June Awareness Month. Provinces are competing against each other to  see who can rack up the most Kilometres (KMs) collectively and earn bragging rights. We encourage you, your  friends, community members and family to get moving for H&SB! You can register as an individual  or a team for a chance to win a prize for the most KMs in your province. Make sure to submit your  photos on our socials with #SWWR or email them to

Connect with us this year!

“Hugs for Hydrocephalus & Smiles for Spina Bifida” is back this June. This is your chance to share your Hugs & Smiles pictures or videos and a few words telling your story or message to someone you care about!

Help everyone across the country feel connected. We can’t wait to post your pics and videos! Take a photo, video or a selfie hugging someone you are living with who is living with hydrocephalus and/or spina bifida (virtual hugs, air hugs and group hugs work too). IMPORTANT: Tell us who is in the picture and say a few words about them or send a message to someone.

Take part in our Hugs for Hydrocephalus and Smiles for Spina Bifida photo/video awareness social media campaigns. SB&H organizations in Alberta, Quebec and Ontario are participating and encourage everyone to submit photos/videos of individuals hugging or smiling with their family  members/friends that live with spina bifida and/or hydrocephalus. We’ll feature your photo and dedication on our social media channels and website so that the special people you care about will feel the love.

Email submissions to and each entry will also be included in a random prize draw.  

To keep the excitement going, HC lit up iconic Canadian landmarks in honour of June  Awareness Month. For the first time ever, Niagara Falls was illuminated on June 6th and the CN  Tower was lit up on June 13th in Hydrocephalus Canada’s shades of blue. Going beyond Ontario, The High Level Bridge in Edmonton also lit up green on June 3rd. 

Par for the Cause 
Earlier this month we announced our 15th Annual Charity Golf Tournament in support of programs and services for HC is back this September. Read all about our GOLF TOURNAMENT and make sure to sign up for your foursome early. 

Make sure to follow us on Facebook, Twitter and Instagram to get the latest updates for June Awareness month. 

2x the Opportunity
Lastly, if you choose to give generously and donate this month, you give HC a chance to WIN $20,000 during the Great Canadian Giving Challenge. Every $1 donated gives us a chance to win, so the more donations we get this month the greater chance we have to earn more money. Make your contribution go long away and think about giving this June. 

More ways to show support:

  • Share our June Awareness poster on social media. Make sure to tag us  
  • Share your story and support others. We want to hear your Hydrocephalus and Spina Bifida stories and. 
  • Show your support on social media by using the following hashtags: #juneawareness2022
  • Wear HC blue this month and snap a selfie; don’t forget to tag us on Facebook 

If you have questions about spina bifida, hydrocephalus or how you can support any of these causes,
 contact us at:

Community Fundraisers!
We just heard that Christine Iggulden is once again contributing a portion of her upcoming sales on a particular item to Hydrocephalus Canada! Way to go Christine!!

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