You can contact SB&H and know that we will be there to listen and support you through the daily challenges of living with spina bifida. We are your source for comfort and understanding, providing emotional support and information. Our staff and volunteers are empathetic having shared many similar experiences.
Having difficulty getting what you need? SB&H can help! When issues arise related to health care, employment, transportation, recreation, education, funding, etc. We are here to support you through the process by giving you the necessary tools to proceed on your own.
Support groups are powered by the sharing of common experiences and concerns. They are a collective exchange where you may find answers to your individual questions. A place to find others who know what it's like, where you're not alone. This safe environment sets the stage for mutual support and encouragement, comfort, information exchange and positive feedback. This atmosphere can also provide personal growth, closer inter-personal relationships and increased self-esteem.
SB&H Support Groups meet periodically as the need arises. For information on support groups in your community or if you are willing to share in the duties of organizing a new group, SB&H will help you get started. Contact Steve Kean, Programs & Services Coordinator at 800-387-1575 ext. 26.
Share your experiences and knowledge through our regional support/social groups that bring people together to meet others affected by spina bifida. Through our Linking Program we encourage one-to-one support between individuals with similar experiences to share coping strategies. Ask us how to get linked by calling 800-387-1575 or email us at firstname.lastname@example.org.
For online peer support visit SB&H's Discussion Forum. This is your opportunity to connect with other adults, parents or caregivers from around the globe. This is a free service and an easy way to network, talk about concerns and share information in a monitored setting.