Hydrocephalus Canada

Information & Education

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Toll-Free Help Line

You should never feel alone or isolated.  By calling our toll-free help line 800-387-1575, you can receive advice on issues such as education, financial assistance, family dynamics, accessibility, employment and much more. 

Our referral service can connect you to resources in your community including health professionals with knowledge about spina bifida and hydrocephalus, recreation and sport activities for individuals living with disabilities and other community services.

Publications Order Form

SB&H is the only organization in the province addressing the particular needs of individuals with spina bifida and/or hydrocephalus and their families. We develop, produce, sell and maintain an inventory of educational and informational materials related to spina bifida and hydrocephalus. We feel it essential that those with spina bifida and/or hydrocephalus as well as family, extended family, friends and health & education professionals be aware and informed of these conditions. 

Download our Publications List.

Information & Education

SB&H is your best source for information about any aspect of spina bifida and/or hydrocephalus.

Researched, quality information is provided on education, self-esteem, sexuality, transitions and other disability related issues. Resources on all medical topics such as bowel management, incontinence and tethered cord are also available. 

The following Customized Information Kits are available:

  • Parent Information Kit on Spina Bifida and/or Hydrocephalus
  • Parent Information Kit on Spina Bifida
  • Parent Information Kit on Hydrocephalus
  • Transition Information Kit for Young Adults
  • Adult Information Kit on Spina Bifida & Hydrocephalus
  • Adult Information Kit on Spina Bifida
  • Adult Information Kit on Hydrocephalus
  • Normal Pressure Hydrocephalus Information Kit
  • Folic Acid Information Package
  • Spina Bifida Occulta Information Package


Complimentary resources are available to adults members to help manage daily living. These resources include:  

  •  Health Guide for Adults Living with Spina Bifida
  •  A Guide to Hydrocephalus


Complimentary publications are available to all parent members with school age children to assist in navigating the complexities of the education system.  These resources include:   

  • Students with Spina Bifida and/or Hydrocephalus-Educator’s Guide
  • A Teacher's Guide to Hydrocephalus
  • Education Handbook for Parents or School Age Children
  • Making the System Work


Children and youth, ages five to nineteen, receive complimentary age-appropriate books that teach them about their condition and it’s affect, in a way that they can understand. Theses resources include: 

  • Disabilities, Dragons and Other Magical Discoveries
  • Another Way To Go (catheterization booklet)
  • Teens Who Self Cath
  • Health-Care Transition Guide for Teens & Young Adults with Hydrocephalus
  • Just Like Any Other Beagle (children's book about hydrocephalus)
  • Detour Ahead (children's book about shunt surgery and hydrocephalus)
  • Right Under My Nose-A book for Children with Spina Bifida


To access SB&H's Information and Education resources please contact us at 800-387-1575 or email us at provincial@sbhao.on.ca