Hydrocephalus Canada

Privacy Policy

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The Spina Bifida & Hydrocephalus Association of Ontario (SB&H) recognizes every individual’s right to privacy and pledges to protect it. SB&H is aware of its responsibilities under the federal Personal Information and Electronics Documents Act (PIPEDA).

Information collected

When visiting www.sbhao.on.ca, our web server automatically logs (records) domain name and standard information about the operating system and web browser an individual is using, as provided by that individual’s web browser. This information is used for statistical purposes to help us manage the www.sbhao.on.ca website, but it does not identify an individual in any way.

SB&H collects personal information about an individual only if s/he volunteers it in a survey and/or guest book and/or other "on site" registrations and/or makes a donation. SB&H may use this information to contact individuals for support purposes and to answer questions submitted to the site by a particular visitor. All information is kept confidential.

If an individual supplies us with her or his mailing address online, s/he may receive periodic mailings from SB&H with information about new programs and services or upcoming events.

We do not trade, sell or share mailing lists with any other organizations.

If an individual does not wish to receive such mailings, s/he can let us know sending a request in writing to us at the address below, including exact name and address, and her or his name will then be removed from our confidential list.

Any questions related to SB&H’s Privacy Policy should be directed to the association’s Privacy Officer, Executive Director Joan Booth, using the contact information listed below.

Contact Information

Spina Bifida & Hydrocephalus Association of Ontario
16 Four Seasons Place, Suite 111
Toronto, Ontario M9B 6E5

Telephone: (416) 214-1056
Fax: (416) 214-1446
Toll Free: (800) 387-1575


By using the website, you agree to be bound by the above, and our disclaimer. If you do not agree with any of these terms, do not use this site.


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