TORONTO, ON - Monday, October 23, 2017 - Hydrocephalus Canada, a newly created national charitable association, today announced a nation-wide mission to provide resources and support for Canadians living with hydrocephalus and normal-pressure hydrocephalus (NPH).
Hydrocephalus Canada incorporates the Spina Bifida and Hydrocephalus Association of Ontario (SBHAO), a 44-year old association with deep roots in Ontario. As Hydrocephalus Canada, the new association will continue to offer the same valued programs and services that the Ontario community relies upon, while expanding their mandate to include the growing number of people across the country living with hydrocephalus and NPH.
Hydrocephalus is a condition defined by an abnormal, excessive accumulation of cerebrospinal fluid (CSF) in the cavities of the brain. While hydrocephalus is a common birth defect (0.1% of babies born annually), the condition can also occur due to brain injury or infection, or, in the case of NPH, as part of the aging process. NPH affects an estimated 770,000 people in the U.S. and Canada, and may often go misdiagnosed as dementia (including Alzheimer’s) in older patients. One study assessed the incidence of NPH among residents of assisted-living facilities at 9% to 14%.
“This national expansion will strengthen the growing community of people living with hydrocephalus and enable us to better support advances in treatment for hydrocephalus and related conditions, and the sharing of education and knowledge, and standards of care,” said Hydrocephalus Canada Interim Executive Director David Disher. “Our mission is to offer strength and support for people living with hydrocephalus, and to contribute to awareness and research. Our hope is to find a cure.”
The new association will build outreach, offer useful information and support for members, and share relevant research and treatment news across medical communities, academia, associations, and industry partners, both nationally and globally.