Hydrocephalus Canada


In November of 2017 the Spina Bifida & Hydrocephalus Association of Ontario (SB&H) began a process of change. We became Hydrocephalus Canada (HC), after supporting families, individuals and healthcare professionals in Ontario for more than 40 years as The Spina Bifida & Hydrocephalus Association of Ontario.

Hydrocephalus Canada incorporates the Spina Bifida and Hydrocephalus Association of Ontario (SB&H). As Hydrocephalus Canada, the new association continues to offer the same valued programs and services that the Ontario community relies upon. But more than that, we are expanding our mandate to include the growing number of people across Canada living with hydrocephalus and Normal Pressure Hydrocephalus.

This national expansion will strengthen the growing community of people living with hydrocephalus and enable us to better support advances in treatment for hydrocephalus and related neurological conditions such as spina bifida, the sharing of education and knowledge, and standards of care. Our mission is to offer strength and support for people living with hydrocephalus and related neurological conditions, and to contribute to awareness and research. At the same time, we will work to find a cure.

The new association will build on the legacy of SB&H in Ontario and use our experience, knowledge and drive to outreach, offer useful information and support for members, and share relevant research and treatment news across medical communities, academia, associations, and industry partners, provincially, nationally and globally.





We are looking for a student to work in our offices in Etobicoke. To qualify for the program, you need to be between the ages of 15 and 30. You must also have been a full time student in the 2017-18 academic year and MUST be returning to school full time for the 2018-19 academic year. 

If you are interested in applying for the position voutlined below, please forward your resume and a short cover letter AS SOON AS POSSIBLE to Steve Kean, Programs & Services Coordinator to skean@hydrocephalus.ca or by mail:

Hydrocephalus Canada
16 Four Seasons Place, Suite 111
Toronto, On
M9B 6E5






Community Engagement and Outreach Assistant

Reporting: This summer position will report to the Information and Services Coordinator

Description: The students filling this position will learn valuable lessons in health promotion and community support. They will assist staff to increase public and stakeholder awareness of the conditions and the benefits, sources and proper use of folic acid and Normal Pressure Hydrocephalus (NPH) education. We will also provide opportunities for them to contribute to marketing and implementation of our new brand and national outreach program. These activities will form the basis of ongoing initiatives to engage the public, people affected by spina bifida and/or hydrocephalus, and their caregivers.

Duties and Responsibilities

  • Students will familiarize themselves with our spina bifida, hydrocephalus and folic acid education and awareness.
  • Outreach to service providers who assist women of child bearing age with perinatal education to determine current needs for these educational resources.
  • Reach out to service providers who support individuals affected by spina bifida and/or hydrocephalus to provide condition specific information.
  • Liaise with staff in planning health promotion and community awareness events and effective distribution of event materials and resources.
  • Distribute folic acid and NPH educational materials to community service providers and the public.
  • Research opportunities for the association to provide educational displays, presentations, etc. in communities across Canada at health events such as pre-natal fairs, health fairs, senior’s fairs, etc.  Collate and chart results in Excel spreadsheet.
  • Assist in building content for “Youth” and Kidz Zone” areas of the Association website.
  • Assist with outreach regarding the Kidz & Youth Book Club.
  • Research opportunities for the Association to promote the hydrocephalus and spina bifida support groups for adults.
  • Assist with content for our social media outlets, ie. Facebook, Twitter & Instagram posts.
  • Additional duties as required.

Only successful candidates will be contacted for interviews. 




2018 Lottery Calendar Featured Artist Profile

Meet our June artist, Jackson Ferguson from Orangeville and read about him and his art:

Jackson lives in Orangeville, and has Hydrocephalus.  He is 10 years old, and enjoys being outside playing golf and baseball in the summer and hockey in the winter!  Jackson also really likes fishing and going on road trips with his family, and playing with their dog, Oscar.



1. How did you come up with the idea for this drawing that is included inside the calendar. 

I wanted to draw how Hydrocephalus makes me feel, STRONG!

2. Why do you like drawing/painting or taking pictures?

I like drawing cause I do it with my mom.

3. How did you feel when you heard your artwork was selected for the TGIF Calendar?

Super Cool! Like my friend Quinn cause he was in the calendar once before too!

4. What are your hobbies and interests?

I love playing golf, baseball and hockey! I love spending time with my family!

5. What do you want to be when you grow up?

I want to be a policeman, or a park ranger! 

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