Media Resources

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Hydrocephalus Canada is the source for accurate, up-to-date information about living with hydrocephalus and/or related neurological conditions across Canada.

These complex, incurable neurological conditions affect more than 25,000 adults, children, parents and caregivers in Canada.  Follow the links below to learn about the conditions as well as SB&H and our commitment to increasing awareness and driving education, research, support, care and advocacy.

Members of the media can access quick, basic information about spina bifida, hydrocephalus, folic acid, SB&H and various Hydrocephalus Canada activities, through these links to fact sheets, media releases, personal stories and other materials. For more information or to arrange an interview, please contact:

Ken Koffman, Director of Development & Promotion 
kkoffman@hydrocephalus.ca
416-214-1056 ext. 227

Fast Facts  Sheets

Folic Acid (PDF)

Hydrocephalus (PDF)

Neural Tube Defects (PDF)

Normal Pressure Hydrocephalus (PDF)

Spina Bifida (PDF)

Spina Bifida & Hydrocephalus Association of Ontario (PDF)

Media Releases

• HYDROCEPHALUS CANADA launches to address the needs of
  the growing number of Canadians living with hydrocephalus
  and normal-pressure hydrocephalus
   
• Celebrate Abilities Throughout June! It’s Spina Bifida & Hydrocephalus Awareness Month!
   
• Duchesnay launches a new video series entitled Are you planning a pregnancy? to mark the Spina Bifida and Hydrocephalus Awareness Month
   
• LCBO Stores Raise Funds for Spina Bifida & Hydrocephalus Association of Ontario July 20 - August 16, 2014
   
• SB&H: 40 Years of Spirit, Breakthrough & Hope in Ontario (May 31, 2013)
   
• LCBO Coin Boxes Support SB&H (May 16, 2013)

News Items

Spirit Wheel Walk Run 2014

Spinal Tappers Spirit Wheel Walk Run

Troy Doesn't Walk Alone

First Annual Spirit Wheel Walk Run to Support SB&H 

Troy's Trail Fundraiser for Hydrocephalus and Spina Bifida Gains Interest Every Year 

6th Annual Gabby's Gift Walk for Spina Bifida

For Grandma

General SB&H News Items

• Becky Attersley is succeeding against the odds
•  
• SB&H Ambassador raises awareness with music
   
• Hydrocephalus and Happily Ever After from Sault Star
   
• Family Gives Back to Lifesaving Organization (Claire’s Cause)
   
• A P.U.S.H. for awareness Danny Lamb and Jay Baty set to release song in support of Spina Bifida and Hydrocephalus (Niagara This Week, Oct. 17, 2013) 
   
• Ontario born musicians Danny Lamb and Jay Baty spent the month of June writing songs and travelling through Europe to raise awareness of Spina Bifida (CHCH TV, July 8, 2013)
   
• ‘Sickest living child’ inspires charity walk in Hamilton (Hamilton Spectator, June 5, 2013)
   

Personal Stories

Information Brochures

Hydrocephalus: What You Should Know (PDF)

Normal Pressure Hydrocephalus  (NPH) (PDF)

SB&H Programs and Services (PDF)

Spina Bifida & Hydrocephalus: The Facts (PDF)